Lisa Colón DeLay

This is my son Nathan.
He’s 12.5 years old.

It’s been a rough few days with him. It’s a dicey combo mixing burgeoning adolescence and the Autistic experience.

His will is strong and he’s often unreasonable. He thinks he’s the rightful King of his world and ours; and I’ve felt discouraged about how poorly things have been going.

But…today, he built these glasses, and it got me to thinking about perspective.

And it gave me a new one.

What’s the bigger lesson here?

What if our windows of perspective are cloudy?

What if the shutters are closed?

How will an obstructed view hurt my ability to guide, lead, or learn?

Will I even be able to notice how poor my vision is?
And how can I get help seeing better?

It’s true that our perspective is limited.

The fact is easy to miss.
We flare with emotion in the dearth of comprehending how perspective works, or doesn’t work.

But, indeed, we can’t possibly see the full view, just the narrow vision our particular spectacles allow.

And with new lens our perspective changes.

Unwittingly, Nathan gave me the encouragement I needed.

This is actually an answer to my prayer for help.

Keep pushing on and Remember the lesson of the Lego Spectacles!

To you Leaders and Bloggers: Don’t forget to link-up with the SynchroBLOG on Leadership sponsored by Evangelical Seminary. Write something this week and contribute September 10-14. 

(Ross is the one in the hat)

Storyless
-by Ross Gale

I have a friend whose mother tells a story of her as a child: when studying for a third grade test using flash cards, my friend strained to think about the answers. Sometimes her mother would have to say the answers out loud, but even then my friend didn’t seem to connect the dots. She’d keep thinking, the answer too far beyond her. Her mother laughs a bit and says, as a child she was a little stupid. This is the story my friend tells herself, that she is stupid.

When she was in junior high and missing school from an illness, she’d beg her mother to return her to class because she needed to get smarter. She loved school. She did not like being stupid.

She is in her twenties now and the stories her parents tell her influence her. She is an over-achiever in the sense that grades matter to her because they reflect who she is. She’s always trying to prove the story wrong, but she also seems to believe that she’ll never be able to prove it wrong. She’ll always be stupid.

The story my father tells me is about when I was three and he was sick in bed with the flu. Everyone was out of the house for the day so I stayed by my father’s side. I didn’t cry or fuss or ask for anything. I just stayed there because he needed me. My father says I have the biggest heart of anyone he knows. The story tells me something about myself. This is who I believe I am.

The stories parents tell their children about them are stories that shape their identity and purpose.

When Mary and Joseph take their son Jesus to Egypt, I imagine them telling him the stories surrounding his birth, the reason they weren’t living in Palestine, and what the angels had each pronounced to them. Before he knew who he was through Scripture, he knew who he was from his parents’ stories.

When a child is disabled like my brother KC, who had a traumatic brain injury at three, the stories my parents tell are stories about a different boy, they are stories about a boy without a disability who doesn’t have seizures, who can run and play sports, who can graduate high school, who can annunciate his words, and speak clearly. They tell stories about a boy with athletic prowess and a stubborn attitude.

An accident like KC’s, however, renders the stories meaningless. With an accident like KC’s he becomes a storyless boy. How do you shape the identity and purpose of a storyless child? This is the tragedy of tragedy; it robs the power of story.

We have a God who gives us this purpose and identity so even when our stories are harmful or meaningless or shameful or stolen, we can become a part of a new story. God’s story. A story of hope, redemption, and meaning.

Ross Gale is a writer and editor from Oregon. His work is featured in Burnside Writers Collective, Antler, Relief Journal, Archipelago, and he contributes to MagicalTeaching.com. He earned his Master of Fine Arts in Creative Writing from Seattle Pacific University. He blogs at rcgale.com where he’s editing the “Bereshit Bara Creativity Series” which asks 13 Creatives to wrestle with questions about what gives them the courage to create.

(click for source)

Cool cats used to say, “See you on the flipside.” Apparently when you flip a day onto its back you get another day, not the nighttime.

A cat (yes, I’m talking felines now) works the same way. If you flip a cat over it doesn’t hit its backside, but it’s flipside. The right side. The same side it should be on. A dog? Forget it. It’s a trip to animal hospital.

The flipside of a coin doesn’t work the same as a cat. The flipside of the coin is the other side. It’s the head or the tail: the opposite. Most people want money and not cats.

Is the flipside like the Kingdom of God?

I went to my first Special Olympics to cheer on my son in the swimming event. Backstroke and freestyle. I saw the flipside. The Kingdom of God is like the Special Olympics. Those who are always last in life get a chance to be first. It’s actually fierce competition, in case you’re wondering.

Athletes train for months. 70% of the swimmers would have bested me in the pool despite possessing Downs Syndrome, mental retardation, autism, and so forth. Counted out in every other point, but no more. It was a day of winning and accomplishment.

Athletes are grouped according to skill level, and sometimes, age. Poor swimming form meets with disqualification. Did you get that? You can be disqualified! I was stunned.

So, not everyone gets a medal in S.O.? Nope. Only one athlete gets first place. This makes the victory legit. A first place medal really means something. It really means #1. It really gives an athlete something to fully celebrate and gives a family something to truly cheer about.

The huge difference between the Special Olympics and the typical Olympics and most other sporting events, is that each athlete is treated like a winner. Everyone is acknowledged. No one is a loser. No one puts a mic in their face and says, “What went wrong?” If one flounders in the water…well, like a cat…one still gets a participation ribbon. Everyone is accepted no matter how they do.

This is how we can enact the Kingdom of God right now. Find someone who’s usually last. Economically, socially, culturally, mentally, and then find a way to make them first, to offer and enact true acceptance. It’s the flipside. It’s the righted way of the world as God’s wants it to be.

Will I see you on the flipside?

What are some ideas to reveal the Kingdom of God flipside?

winner

My conversation with the foremost Pentecostal Theologian, Amos Yong, has 2 parts. First, we talk about the themes in his new book “The Bible, Disability, and the Church”.

Click for Video (part I)

Below is part II of our talk. We cover some excellent topics like healing, God’s will, social oppression in the church, communal prayers of lament, his Disability Bible project (and more).

Click to view Part II

#PickMeEllen is Ellen Degeneres‘ project to spread some Christmas spirit. People tweet their requests using that hashtag. A few people will be chosen for Christmas surprises.

Please help me get a message to Ellen that my neighbor needs a wheel chair lift very badly. His mom carries him up the stairs from the road over her shoulder a few times per day. The railing is unusable and the stairs are cracked. She will fall, it’s only a matter of when. It’s very dangerous for her and him. I think it’s a great Christmas project to help them, and I need your help.Tweet this article, or contact the Ellen show (link on her name above.)

Hey, If I can’t get Ellen to be my Santa, will you help, if I set up a fund to raise money for Kristian?

Tweet this story, link to it, or do something to help about this sweet kid!

super steep stairs, crappy railing, pre-accident spot for Kristian and his mom

Kristian is 15 (he looks like a NiNJA in this pose a little, but actually he can't walk)

I Corinthians 12:22 In fact, the parts of the (church) body that seem weakest and least important are the most indispensable.

1 in 5 homes has a person with some kind of disability living in it. But they are not a statistic. They are a family who needs you. Sometimes I hear people say, “I’d really like to help, but I don’t know where to start.”

With so many needs, it’s easy to feel overwhelmed. But, one’s time and resources to help the disabled needn’t be expensive or difficult. The most important thing is showing up and allowing yourself to be used by God.

Many times those families in need want to know someone really cares, more than anything. They probably won’t be able to reach out and ask you for help, in the middle of struggling with their circumstances, but even small and simple efforts can bring them help, joy, and comfort.

Don’t start with a disability. Start with a family.

A Visual Guide to Ministry with the Disabled
I encourage you to use this Visual Guide to Ministry with the Disabled poster. I created it to help ministers and compassionate Christians aid the disabled in crucial ways. You can access it here. Please contact me if you have questions about it. This guide works through a logical progression of needs, and leads up to  interdependence, mutual care and ministry, which is what the Kingdom of God is all about.

This Visual Guide may be printed and distributed as needed, and is under a free use Creative Commons license that you see below.

Make your life be a blessing!

“Guide to Ministry with the Disabled” by Lisa Colón DeLay is licensed under a Creative Commons Attribution 3.0 Unported License.
Available at docs.google.com.
Permissions beyond the scope of this license may be available by contacting the creator at http://lisadelay.com.

Photography by Andreas Stridsberg

This month, I’ve been focusing some posts on mental health.

Today, it’s Borderline Personality Disorder. Sounds like something really weird, right? It’s surprised me to learn about this.

It’s a love/hate thing, and I think it’s a bit more common than either one of us realize. The description may surprise you, too. When you read it, co-workers, family members, friends, acquaintances, neighbors will come to mind, and you’ll think, “Whoa, you can diagnose this, for real?”

Wikipedia describes BPD as a prolonged disturbance of personality function characterized by depth and variability of moods.^{[n 1]} Usually the disorder involves unusual levels of instability in mood; black and white thinking, or splitting.

The disorder often manifests itself in idealization and devaluation episodes, as well as chaotic and unstable interpersonal relationships, self-image, identity, and behavior; as well as a disturbance in the individual’s sense of self. In extreme cases, this disturbance in the sense of self can lead to periods of dissociation, self-harm, or violence.^[1]

BPD splitting (all-or-nothing thinking) includes a switch between idealizing and demonizing others. Obviously, this, combined with mood disturbances, can undermine relationships with family, friends, neighbors, and co-workers.

Sound like anyone you know?

Does this mean extremism is a mental disorder? hum?

Some Symptoms:

• Fear of being abandoned
• Feelings of emptiness and boredom
• Frequent displays of inappropriate anger
• Impulsiveness with interests, money, substance abuse, sexual relationships, binge eating, or shoplifting
• Intolerance of being alone
• Repeated crises and acts of self-injury, such as wrist cutting or overdosing

Treatment and medication are helpful.

More here:
(National Center for Biotechnology Information, U.S. National Library of Medicine)

Did you find this information interesting? Let me know.

Doing Church

Did you know that Church and Relationship are synonyms?

This Thursday was the second week in a row that we had a friend come to play with Nathan. Michael is a year ahead of Nathan at his school. Michael, too, has autism and its noticeable in different and similar ways (more on that some other time). He’s an only child, and making friends is tough. It’s not natural for him, but the opportunities are few as well. Together, we’re changing that.

Having him and his mom here felt like ‘doing church’ in the most wonderful of ways. Their visit warmed my heart. “Church,” in this case, means that it’s the first time in much too long where I could tell that I, no we, were living life together. We were enjoying a deeper connection and community in a natural way. In ways we all hope for when we go to church. It feels like coming home with supper waiting for you. It consists of acceptance, warts, and joys, and all. The common was somehow sacred this Thursday.

My hope it that Michael always knows he’s fully accepted and valued here. He is. I’ve made a kind of internal vow for our home to be a safe and loving place for him to be himself. He’s picked up on that. If his mom’s work schedule allows they’ll be over again this Thursday. He says, “We have a meeting.”

I’ll try to put up some video soon, because the way these two boys interact is so hilarious and sweet, and I know you’ll love it.

Make Your Home “church”
Here are some tips, if you’d like to make your home a welcoming environment for a child with autism, so a visit is something to look forward to and enjoy. (Share this information with your children.)

• Structure. Don’t expect that a child visiting will just play. Or do well if there are toys and game around. For kids, with autism anyway, most must learn simple social skills and interactions and adapt through practice. It’s really awkward at first for them. But, it gets figured out through process. You might want to create something, cook something, or play a short game, all together. Doing something with a beginning, middle, and end will add sense to the visit for them. A free play or open-ended style of interactions won’t lend to a high quality visit.

• Time limit. When Michael visits, he likes to stay for 60-75 minutes. He tells us when he wants to go. This is great, but not all kids will know when enough is enough. This can be hard on everyone involved. Plan the get-together with a defined time frame–from the outset. I suggest 45 mites to start (this depends on the child. 30 minutes for a young child might be better). Later you can move to up to 90 minutes. But play for over 2 hours, or trying for an open ended meet up can be counter-productive. A defined time slot things end on a high note, and it’s fairly easy to prepare for the visit.

• Provide goodies. Ahead of time, ask if there are food preferences or allergy issues, and then make sure to offer a snack and beverage. Food is powerful. Use it wisely.

• Ask Questions. Make an effort to interact personally a few times. Ask a “yes” or “no” question, or an “either/or” question, and indicate your interest and acceptance right away, and along the way. Don’t expect anything, just do it. If it falls flat, try again in a little bit. Be Patient. Children are more like gardens than firecrackers. (So cultivate, rather than expect a dazzling display from a brief “matching”.)

• Issues of Eye Contact and Touch We take these social things for granted and generally know what is acceptable with others, and when and where eye contact and touch it is acceptable. Many disabled children do not. They may kiss you all of a sudden, or never even glance at you. Don’t expect them to make eye contact, and don’t try to touch them unless it seems very obvious that they wouldn’t mind. (Realize that for some kids, it feels painful to be touched. Yes, painful. Same goes for eye contact.) That being said, once I’ve built trust, I find kids really appreciate and respond well to a hand on the shoulder or back, or light pressure/touch on the arm, and they warm up to me very quickly. Since sometimes others are afraid to touch them (because they’ve seen big reactions), or because they don’t have friends they interact with closely, they are sort of touch-starved. Acceptable and respectful touch will establish trust. It’s surprising.

• Notice Stuff. Maybe mention that they look good in red, they are wearing cool shoes, or that they’re getting big and strong. See them. Then, say something to let them know. This shows them that they matter to you. Make concrete comments (facts) to them, about them. It gives them a sense of personhood, or place…at the table, if you will.

• Talk to the parents. This might seem obvious, but I’m always surprised at how much the parents of disabled children feel relieved to interact and relax with conversation and company. Encourage this. They don’t often get to “feel human” because of all the stress that goes along with caring for their child. (They’re “going” or “on” all the time. It’s exhausting.)

• Follow Up. Plan ahead for the next time, soon. Set up something that day, or within a week, to have another time together. If we don’t do this, it falls off our radar. Use a pen and mark the calendar. Consistency is key.

Are you “doing church” with anyone? Why or why not?

Verse of Reflection: 

^{Matthew 25:44-45} “Then they will reply, ‘Lord, when did we ever see you hungry or thirsty or a stranger or naked or sick or in prison, and not help you?’

“And he will answer, ‘I tell you the truth, when you refused to help the least of these my brothers and sisters, you were refusing to help me.’

Questions, comments, suggestions?

Nathan is weird. Embrace it! (Pssssst. You're weird too.)

I’m taking a Theology of Disabilities course right now. I have to admit that some baggage that I didn’t realize I was carrying has gotten heavy. I’m putting it down, starting now. The truth is, I realize I have felt disappointed by the church, and by my church. I’m hurt that the church has failed so badly in helping the disabled (specifically my disabled child) feel like they really belong. It’s not just about allowing the disabled to be there near us, it’s about really knowing them, and really appreciating who they are, because God made them, and they are valuable.

Ya see, times have changed. When I grew up in the 1980s, we’d all make fun of kids that “rode the short bus”…maybe not to their face, but imitating “Tards” was something I excelled at. I was hilarious. I was the disabled one, if we’re telling the truth here. I was spiritually retarded. God gave me a precious gift in my son to show me God’s true heart. To show me my true humanity. The disabled personify the weakness we avoid. Nathan helps me get over my human/secular and foolish ideas about what it means to belong and be successful in God’s worldview.

Here’s the other cool thing. God gave me Nathan to share with you, too!

I think, my generation still fears the disabled. I doubt many will dare admit it. (It’s not politically correct, and we can’t look like uncaring jerks, right?) To most of us, the disabled are still a stigmatized and strange group; and we don’t know what to do with them…we don’t know what to do around them…we aren’t sure what they need. It’s all quite uncomfortable. Gosh, we are so glad we are not them. And we’re afraid. Afraid of the unknown and the unfamiliar, and the “other”.

Here’s the surprising twist. Our (non disabled) kids don’t have the same mentality. They don’t. Over the last 10-20 years, those with disabilities haven’t been sent away to special schools. They have been included, or in far closer proximity to typically developing children. The secular, public schools have outdone, and surpassed the church in this area of grace. They have honored and accepted disabled kids more than the church.

Please. Read those 2 previous sentences again…Slowly. Okay, never mind. I’ll just state it again: They (secular institutions and those who are a part of them) have honored and accepted disabled kids more than the church has.

(Yes. You should feel convicted right now. Even crying wouldn’t be over-the-top.)

As a Parent:
As the mom of a disabled child, I find that typically developing children, with just the a little bit of prompting or advice, adjust very well to interacting with my son, as if he’s a real human being who desires friendship. They even enjoy him! (It’s not just charity. It’s reciprocal friendship. It’s the kind of relating where everyone wins.)

On the other hand, I find that it is the parents of these (non disabled) children who are fearful, and unwilling to engage with my son, beyond the superficial. They are fearful enough to not help their child build friendships, or regularly interact with a disabled peer, or near-peer. They don’t create an easy opportunity for their child to grow, learn and become more compassionate. They don’t make it priority. As a child’s primary guide, this is a gross failure.

Church:
But this is different at church, right? It’s a place of acceptance, and hospitality, and belonging, right? God’s love is shown in tangible ways, right? WRONG. My son has more meaningful relationships and friendships, and more grace shown to him with unChristians, in secular (even godless) environments, and with neighborhood children. (See, the government schools have been telling them that these atypical kids were worth interacting with.)

KIDS @ PLAY
Once upon a time, I bemoaned to a woman at church the fact that Nathan had no friends at church, no meaningful interactions with any church children, no invitations extended to him to play with them, go to their birthday parties, or even watch a movie together (even after we had make a lot of efforts to create those situations, and occasions). Her reply, “Well, I can’t force my kids to play with certain kids, and to like certain friends.”

I listened to her statement, and I didn’t really know what to say. I didn’t challenge it. After all, this was a pastor’s wife talking. An example for us all. (I kid.) Upon reflection, I should have said, “LIKE HELL YOU CAN’T!”

As parents, we do it all the time. We curb or we encourage friendships for our kids regularly. Do we let our kids hang out with teenagers on the corner who are smoking? Uh, no. Does a naughty and petulant child get to sleep over? No. What about the children who bite, hit, or cuss? Do they get to make cookies in our kitchen with us? Nope. We influence our kids all the time. The fact is fear stops our hospitality. We stick with our comfort level, and pick our favorites.

I’m here to tell you that God has given us these different sounding and acting people as gifts, to teach us so much, but we don’t choose to interact, learn and be gracious.

“But I can’t find a disabled kid… What am I supposed to do?”
Well, try harder. Open your eyes. Ask around. Do you want the truth? The facts? Here they are: Do you live near 5 other homes? If you walk down your street, and pass 5 homes, 1 of those homes will be effected by disability.  1/5 of families are effected by disability everyday. 

Do you know more than 6 children? If you know 6 children, 1 of them is likely to have a form of autism, or developmental issue.

Sometimes, I hear this: “Is it my job? How can I be responsible for knowing other people’s needs. I’m just not in their shoes.”
Yes. It’s your job. A frequent reason (or cop out) is saying that the parents of disabled children should just say what they need, and make the efforts to get their kids included. BULL CRAP!

Just thinking up a list of wants and needs would sound exhausting to a parent of a disabled child. Some days, they are just trying to make it through the day. Over 85% percent of marriages don’t survive when disability is an issue. It’s tougher than you think it is.

Listen. These parents have enough to deal with. Wake up! They have enough to do than to also make sure typical children are accepting and relating to their disabled kid/s. Mostly, they are tired. It doesn’t feel worth the effort. Failure seems sure. They are surrounded by frequent disappointments, the broken dream of not having a normal kid, and lots of scheduling issues and therapeutic measures in school, community, and other locations that help their kid or their family. They don’t have enough energy to get people on board with that type of stuff on top of everything else. (Ask them what a typical week is like, go ahead.)

YOUTH GROUP
My son went from being very excited to be old enough to be included in the middle school Sunday School section (See, in 5th grade…you get to sit on cozy couches!!) to now, about a year later, in 6th grade, detesting Sunday School, feeling like an outcast (even more than he had before), and now he doesn’t even believe in God. He says, “God is an unbelievable story.”

Based on the way many Christians behave toward him, he has an excellent point.

Like plenty of other children with autism or developmental disabilities (BTW…”developmental disabilities ” is nicest term for “retards” or “mentally retarded”), Nathan doesn’t get abstract ideas like, “Is Jesus in your heart?” (He hears, “Is a bearded man in your chest cavity?” Utter nonsense!)

Nathan can’t see or touch Jesus; we have to be Jesus for him. He has to experience love-in-action, benefit from it, and be allowed to return this love as an equal. I don’t know if it’s too late for my church to be hospitable in the way that he’ll to want to be a part of it. I will keep that hope. I’m writing this now to start a change in how we respond and interact, so other kids with disabilities can feel like they belong, and are loved and accepted.

TIPS to get you started (for kids and adults)
• Interaction doesn’t have to be hours of incredibly awesome friendship per day or week. A blood brother bond is not necessary. But, the interaction should be authentic, not out of duty or pity. Something simple like making something for them, sharing something, or just chatting pleasantly with them is plenty for starters.

• Asking about their interests (direct questions are best, maybe even just asking “yes or no” questions, at first), and then actually listening to them (even when you may not always understand them or know what to say) is helpful. They WILL understand when you care about them. Just take a bit of time to be gracious. It’ll do you good.

• Inviting them over for a snack, to watch a movie, take a walk, ride bikes, play with your pet, or play videos games may be enjoyable for them. Ask if you can visit them. Create times that are specially for them, even if they are brief periods. 30-45 minutes is fine. (But realize they will love you for it, and want to do it again soon. My son never seems to stop talking about the boy we invited over to play, about 2 months ago.)

• Offer them yourself. Nothing fancy. Invest in them for real, emotionally, and with some of your time and efforts. When you offer authentic friendship it looks different than just a saying or doing the “right thing”. You take a risk.)

• Help them make a craft, picture, or a simple snack, play a game, look at a book, build with legos, and take the time to talk to them, or just be close by and attentive, etc. and show them you like them.

• Offer the parents of disabled kids respite time. Give them an hour or two break, and get the help, information, and extra helpers you may need to care for the child. (Only 10% of churches do this. Change this statistic.)

• Be inviting.
What’s the worst that could happen if you invite a family over to your house? Maybe the child will do something unpredictable, and you won’t know what to do? Maybe you will feel uncomfortable? Get Over it.

MOVING FORWARD:

Where and how have you seen the disabled as full-fledged participants in your community or ministry? (How was it done rightly?)

AND–
How can I help you? If you want to show kindness, or God’s love to a family of a disabled person, or to a disabled person, What are your questions or concerns?

What about including or interacting with the disabled would you like to know? 

What are your fears? Share them.

Let’s get this ball rolling. No question is off limits. Your comments, or experiences can be shared as well.

Thanks for reading. Thanks for changing for the better.
-Lisa 

Freddy, worshiping.

As I move toward a more formed definition of how gender issues can be transcended in the Kingdom of God, I’m hitting some roadblocks obstacles. Very expectedly, too.

This “Capacitarian” proposal, if you will indulge this term, is not all cut and dry…like so many abstract things, that must come to fruition by enactment. I continue to solicit your thoughts, and input. No, I won’t give the pretense of having a fully-formed argument. “In-process” is the operative word for this excursion. Yet, I bother to bring it up, in the first place, because I see some glaring shortcomings in our current models.

If you see some, too. I hope you’ll mention them.

(And yes, I made up the word for this proposal:  ”Capacitarian” Pronounced: <CAP-pass-it-Tarry-ann>)

Why does the term “egalitarian” fail us?
A few have (rightly, I might add)  asked, something like, “If you want men and women to be treated and appreciated with equal worth, why don’t you just say, or use the term “egalitarian”?”

Here are a few reasons:

• Egalitarianism (proper) is too closely associated with politics and economic interests. It always has been. This has a consequential, and incongruent for our purposes, legal component, too. It is an interference, not a boon, to Kingdom life and the enactment of the gospel.

• Egalitarianism, as in “Christian Egalitarianism”, is most often understood as “the idea that men and women can and should function as equals in the church,” even if (or though) the true meaning is broader. The word means something beyond gender, like, rich and poor should function as equals…able-bodied and disabled…you get the idea. The prevailing connotation has undermined the term, making it less helpful. Simply put: “Egalitarianism,” the term, is not accurate enough. It shortchanges the bigger idea of what God is up to.

• God’s economy never really jives with our own. The actual working out of egalitarianism proves this, as well. It’s not enough to say, “We’re equal, let’s act that way.” Remember something called the Jim Crow laws from 9th grade history class? (Or, even better, maybe you recall them from experience. Separate but equal is ruse, whether intentionally or not.)

The difference is that a worldview change is in order, not just a mode or method of equalizing the parties involved.

• So, I propose we let go of using human economic terms which will move the conversation forward.

Likewise, if we use words for this issue that connote or speak in terms of power, (be it: social, political, gender, economic, racial, etc) we commence at the same starting point as we’ve had before. A secular starting point.

• This faulty starting point inherently undercuts the ironically nonpolitical (apolitical) quality of Kingdom life. My idea is to get away from human-centric thinking, not co-opt with it. There is a reversal of power in God’s economy, but not an antithetical reversal. So, we’re speaking of a whole new model where one cannot simply speak of things in reverse to properly apprehend it, or put it to rights.

• Equal opportunity of the members in the Body isn’t determined primarily by sentiments that “We are all of equal worth in the eyes of God.” True as this is, it is better sourced in the nature of God as person (a.k.a. “personhood”) *See note below. God’s Story is the starting point.

Capacitarianism
• It is in the very nature of God to forgo favoritism based on things humans would see as advantageous. We may give equal opportunity because we think that it is right or just. But this worldview is not about righting wrongs, or getting it right as (humanly speaking) its fundamental application point. Rather, it’s a new way of seeing and living in this world…Kingdom Come. [Theo-centric worldview]

So, moving forward we adopt that characteristic of God for our ways of relating too. Well, more than adopt. We absorb, and live and breath it. (It is the basis of our relating.)

• It is in the overarching plans of God (as seen in the whole of Scripture) that each one of us is “set free”. We reach our full potential as this occurs. We transcend, not just overcome our cultural bondage, et.al.. (See this Lukian passage, and the prophet Isaiah)

• Thus, restrictions based on finite qualities (nationality, gender, physical ability, financial prosperity, etc.) have nothing to do with God’s nature, and his vantage point. All those restrictions are eschewed. Being “set free” is the telos of creation.

• Harmonious/loving relationship, not (primarily) equality, is main aim of children of God…Kingdom citizens, in this proposal.

Paul advises this, speaking often of and encouraging unity in the Body.
Tri-unity (Trinity) is the essence of God. God: Communion and Love reciprocated ad infinitum.

• Hierarchy, then,  for our purposes, is a non issue (off the table), in any typical way we would be able to apprehend it, from a human understanding or from our experience. So, I contend that we cannot do well to draw on our flawed applications of so-called hierarchy if we are to move forward on this issue.

One more consideration on the particulars:
I propose that the idea of “the last will be first” is not a speaking of reversal of fortune, or class/status, but a full dismantling of human interaction, economy, epistemology, and eschatology as we have known it. That is to say: we don’t have a good way to gauge who is last or first, as we normally perceive life. I should also say that this means we will be very surprised who may or may not be “first”…whatever that means to God. It will likely mean something different to God, in itself, than to our understanding. God is speaking in terms, and will actualize terms in God’s way. It won’t look like what we imagine it will. I’m not sure his ways ever really have. The whole manner of the Messiah thing/Incarnation came as quite a shock, for instance.

What Capacitarian cannot be:
With regard to studying the marginalized, and in particular the disabled, it is critical to note that “capacity” in human intellectual, ability, or physical terms is not the pivot point for Capacitarian thinking. The capacity denoted has to do with the Holy Spirit giving us capacity for his good work. And, “work” he what God determines it is…which may just be lying there, vegetative, and soaking in Divine love.

A case in point: A severely mentally disabled child is given great grace and capacity by God. A simple, pure, and powerful faith and enjoyment of God which may not be attained by her “normal” peers or her church family in the same capacity. She may revel in worship music, with her whole soul (being); given capacity to be aware of and experience God’s holy love in that very moment.

Likewise, others historically on the margins of society may be afforded capacity in gifting, and understanding, and the Body of Christ utilizes each one in their unique way. (This may not appear to be equal in application, or role, but it is not gender-based either.)

• Suffering, or experiencing trials, it seems increases the opportunities for said capacity. (See James 1)

Each member of the body is given full honor. Each has a gift to give to the Body.

To be continued, next week!

Your thoughts are welcome during this process. Leave your comments.

* Note that person and personality is not exclusive to humanity (human persons), but rather refers to a being, individuality, or creatureliness, plus relational capacity. A being is a person, even a divine being is, in the case that this being is accessible (imminent). Basic Theology asserts God is both transcendent and imminent. God is a Person, Three-in-one.

Next post! The promised interview with Caleb Wilde, Funeral Director and author of the upcoming book, Confessions of a Funeral Director: Working Between This World and the Next.

Nathan is my little bunny

I have been observing the spiritual journey of my autistic son, Nathan, quite closely for the last three or four weeks. If you haven’t been following the posts about it, here, this is the short version of the backstory:

Nathan, as of a few months ago, professed to not believing in God. This is a  change from his former beliefs. He now claims that God, the Bible, and the stories of Christianity are “unbelievable stories,” as he says. It’s fake. A fraud.

The undertaking
To me, it seemed like the perfect time to more closely explore spiritual formation (a.k.a. discipleship) and theology as it pertains to disability. Besides encouraging Nathan in his spiritual formation (no matter how messy or personally unsettling or uncomfortable), I’ve hoped to learn from him, and share my findings. This includes studying on the theology of disability, and documenting Nathan’s time of exploration, with respect for my son’s unique spiritual growth process and experience of the world. For my readers, I’ve hoped to encourage deeper thought and consideration about spiritual growth, and the nature of God.

Where things are now
My attention to Nathan’s beliefs and journey, and the recording of them have reached a blockade. Nathan has expressed that he does not want to be filmed, and wants to not speak about the subject. He’s not ready to go about things this way. I will respect this. His basic sentiment is emotional, and preferential, not logical or given to dialogue. So, I will to put this closer study (at least of him, in a personal way) on hold, until a time comes when it seems productive to pick up with it again. I’ll post about it, occasionally, as insights, changes, or advancements occur. This story is far from over.

Bunny Studies
I got up early this morning and went out on the porch with my coffee to enjoy the unseasonably mild morning weather and take in the sights of the creatures that are neighbors with us. We have a few nests, some very vocal birds, several rabbit families, and a very clever chipmunk who has constructed an elaborate series of tunnels that I suspect could be a secret lair. This morning I saw him enter and leave two different homes, scale a brick chimney, shoot into the roof gutter, and out of sight, maybe to the attic of my neighbor’s home. Clearly, he’s up to something.

I saw a mother rabbit and her bunny nibbling at the dewy clover. They were relaxed in their surroundings, and quite hungry. It made me think of one of my favorite children’s stories: The classic called  The Runaway Bunny by Margaret Wise Brown. The bunny hopes to be free from his mother, and tells her all the ways he plans to runaway. The mother rabbit does not tell him stay, but rather shows her steadfast love for him. She accepts his wild heart. She comforts him. For every idea he shares about leaving, she has a plan to love him faithfully and reunite with him. This story was refered to in a theological way profoundly in a  film I saw called Wit starring Emma Thompson. It’s a movie that changed me, and help me see God, better.

Wit was adapted from the play W;t, by Margaret Edson. ( In the context of the play, the semicolon refers to the recurring theme of the use of a semicolon versus a comma in one of John Donne’s Holy Sonnets.) Wit won the 1999 Pulitzer Prize for Drama. The main character, Vivan, a college English professor, is dying of ovarian cancer. At the end, Vivan’s admired, former-professor and mentor comes to visit while she is in town for her great-grandson’s birthday. She comforts her and offers to read to her a Donne sonnet. Vivian, scarcely conscious, declines. So instead, Dr Ashford reads from Margaret Wise Brown‘s The Runaway Bunny, which she had bought for her great-grandson. She remarks that it offers a lovely “allegory of the soul”: Wherever the soul tries to hide, God, comfortingly, will find it. (This section was taken from Wikipedia. Read it in full, here.)

God is our Mother Rabbit. For my son, I am a flesh and blood representation of God to him. I am his mother rabbit, and his is my beloved bunny.

I realize, even more thoroughly than I had realized before, that part of growing up includes the professions of and steps toward independence. Perhaps consistent love faithfulness are the most helpful things we can offer children who are not yet mature enough to make their own way in the world.

Thank you for coming along for this leg of the journey. Your thoughts or comments are quite welcome here.

Engaging mortality (pet dies) 47 sec video.

Here is another (short) installment in exploring the theology of disability and the spiritual growth/development of my autistic son, Nathan (age 11) who has recently claimed that he doesn’t not believe in God (see previous posts).

Part of the spiritual formation process involves engagement with mortality; and so it does for Nathan too. The two fish Nathan caught at the lake recently died in captivity yesterday. He found this very sad. His approach to their passing was very simplistic. They stopped moving, so they are dead. As expected, he wasn’t able to delve into abstract thoughts on this, or death and life, but yet he still understood something profound had happened (see video). Something sort of normal, yet broken about the world seemed real to him. This world is a place were we can be separated from things we care about, in this case, creatures/pets.

On his own, Nathan expressed that he wanted to bury them. This seemed proper to him. The “burial at sea” choice, a.k.a. flushing his two fish friends, seemed unseemly, when I mentioned that some people bury their fish this way.

He took the jar to the garden and added the remains there himself. It was his own idea. Today he said, “[It would] provide nutrients [to the garden]“. He got a bit of a chance to learn that everything dies. I refrained from singing Elton John’s The Circle of Life song from the Lion King. But, it was a “circle of life moment” for sure. Sort of strange and sad and bewildering, yet part of regular life.

A little bit after he buried them, I told him that in heaven we can be with people who have died; people that we miss, and we won’t be separated from them forever. That’s our hope and it can help us to not be as sad. He didn’t seem to be interested, and I didn’t go into it any further. This event may soon open doors for fuller dialogue about life/existence, and the ways of life and death. And I hope redemption!

His sentiment, in general, seemed properly child-like as well as very pragmatic. It will be interesting to hear how he describes the fish, and their death to his sister after we pick her up from camp soon.

Please share your comments or ideas about this.
Question for reflection or comment. How has the death of pets shaped your spiritual formation, or those of your children?

What are your suggestions for guiding others into greater spiritual maturity with this topic at hand?

OH! one more thing. Don’t miss that really interesting look at grief through the primary lens of separation anxiety, here. 

Video’s BACK STORY:

To get an idea of who Nathan is, and how he thinks (a VERY rough estimation) I’ll be posting some video of interviews with him on his thoughts about God, spiritual things, love, truth, Scripture, Christianity, and things that pertain to this delving into his spiritual formation and understanding.

Nathan caught the fish shown in the jar at the lake today. As is sometimes the case, he didn’t want to talk much in general, but through a short series of videos, starting with this one, I hope to flesh out some of his ideas about God, Christianity, the Bible, and what he is like as a person, as his moves to greater maturity.

For a few months he’s had adverse reactions and responses to attending church, to hearing prayer (at home and elsewhere), speaking about God, and the like. What is really going on inside him? I don’t know. Perhaps it is merely pre-adolencent surge of self-expression and independence. Or perhaps, like me and many others, he has to come to terms with God in his own time, and in his own way. As recently as 6 months ago, Nathan claimed to love and believe in the God of the Bible. Now he says that he know longer believes what he did before. Perhaps as I investigate more will come to light.

1st Video (30 sec)

Like all of us, Nathan is a work in progress. My hope is not to compell Nathan to swiftly see things “my way” (your basic Nicene Creed stuff), but rather to engage this perplexing time as a vital part of his growth as a person and a spiritual being made in the image of God…even if that means he goes into some very messy places on the way. Most of us don’t realize just how messy we are.

A few years ago Nathan told me that God’s love was in [him]. I still believe it is. In reality I can’t force him to believe anything. Plus he notices all too well when that is the intension, so it’s incredibility counterproductive to simply debate or convince him.

Part of being a parent is to guide (not command) and be willing to go into challenging territory. This is just that.

I have full confidence in the grace of God (not an angry white, bearded man in the sky, but the Supreme Being of Mercy) to save my son, and meet him where he is, now and for all times.

Nathan has mental challenges, and it is a profound lesson in grace for me to know that my understanding, or lack of understanding about God and reality is not what saves me (or anybody else) from separation from God. I don’t know where this journey will go, or how long I will chronicle it, or discuss it here, but I ask that you join me.

The greater journey here for all of us may involve our own theological concepts that include beliefs, theories, or knowledge of how we come to know God, grace, and move along in spiritual growth/formation. It also raises bigger and more formidable questions like:

• How do the mentally challenged fit (or how well do they fit) into our typical Christian model in the family of God/body of Christ, or a compassionate and healthy society?

• How much do we think our knowledge saves us?

• How do we minister and aid people (of many varieties) in their spiritual understanding and personal growth. And plenty more…

All big questions and I welcome your comments or reflections throughout this process.

SO–What questions would you ask Nathan?

For your own reflection or comment here: What is it about mental disability that may change your ideas of grace/salvation, or put your beliefs, doctrine, or knowledge to the test, if any?

What else is important to explore in this process? (I’m taking input during this process.)

Thanks for your help!
-Lisa

In reality, all of us “healthy” or “normal” people can more aptly call ourselves, “the temporarily able-bodied.”

Theologian, sociologist, and author Nancy Eiesland was wheelchair bound since childhood. She surprised many when she said she hoped to be disabled in heaven. She died at age 44 of congenital lung cancer, but not before she made huge inroads for the Rights and Dignity of the Disabled, and penned a groundbreaking book about understanding disability, and suffering, in light of God, and his nature.

Nancy Eiesland 1965-2009

Article excerpt on Eiesland from the “Scotsman” publication:

By the time of her death, Eiesland had come to believe God was disabled, a view she articulated in her influential 1994 book, The Disabled God: Toward a Liberatory Theology of Disability. She pointed to the scene described in Luke 24:36-39 in which the risen Jesus invites his disciples to touch his wounds.

“In presenting his impaired body to his startled friends, the resurrected Jesus is revealed as the disabled God,” she wrote. God remains a God the disabled can identify with, she argued – he is not cured and made whole; his injury is part of him, neither a divine punishment nor an opportunity for healing. FULL ARTICLE HERE

Toward a Liberatory Theology of Disability

Nathan, like many who experience Autism, often doesn't like having his picture taken. (Later, he saw this photo, and thought it was funny.)

Currently I am taking a rather fascinating class delving into the topic of God and Suffering, called “The Theology of Suffering.” For my final project, I am taking on a specific topic under that category–Disability.

I’m endeavoring to uncover questions like, “Why does God allow children, and adults, to suffer with disabilities?” “Is disability part of God’s plan, or part of what’s broken and wrong in the world?” “What place do the “disabled” have in “God’s Story”?” “How can care-givers of those with disabilities view this type of suffering in light of what God has done, what he is doing, and what he will do?” And some other questions.

In 2001, when my son started to struggle with a rather severe case of regressive autism, I wondered not just what was going on with him, but why? What was the point? I have to say, it all seemed like a mistake. My faith was shaken; not because I thought I should be able to have the child of my dreams, (this was a sad part of it too,) but because seeing my child suffer so badly made me question what God was really like. After a period of grieving, I had to find out more.

Nathan made a paper Nativity set at Christmas

Our son went from meeting all his developmental milestones ahead of time (rolling over, sitting, walking, talking), to not even answering to his own name for days on end, not reacting to pain in any normal way, not speaking to us, and not even calling us “Mommy” and “Daddy” any longer. I didn’t know where to turn, on many levels, and I wondered why God would want to kill me by breaking my heart, day-by-day, as my son sank into frustration, fear, pain, and despair. At times I felt hopeless.

We don’t live near family, and I’d like to say our church, and other Christians, were helpful, but almost no one reached out in any way that was truly or consistently supportive, or meaningful. Experiencing disability and struggle has a way of isolating us, and creating more hopelessness to wade through.

Instead, the opposite can be true. The disabled have much to teach us about hospitality, a characteristic of God, both individually and as a community.

The primary text I’m reading for my research is Vulnerable Communion: A Theology of Disability and Hospitality by Thomas E. Reynolds. What an interesting book!

Vulnerable Communion: A Theology of Disability and Hospitality -Thomas E. Reynolds

Here are a few nuggets I’ve gathered:

• The “disabled” are a picture of human weakness and vulnerability, from which we can learn about the human condition, and God himself. They teach us about the goal of Reliance, versus our misguided and typical goal of “independence.”

• These people are at the center of God’s love, and made in God’s image, they display attributes of God. They help us to see the true nature of God–One who made himself weaker and vulnerable, and still is vulnerable to us. (This vulnerability is epitomized in the historical event, and saving action of Christ’s sacrifice on the Cross at Calvary.)

• The “disabled” give us the opportunity to learn, practice, and experience hospitality, and “do for God” (Matt: 25:40 “And the King will say, ‘I tell you the truth, when you did it to one of the least of these my brothers and sisters, you were doing it to me!”)

This is a topic close to my heart. Uncovering more about it has helped me to not just understand my son, and his struggles better, but to understand God, his character, and his intentions.

Now I’m wondering, “Is it time to write a book on this?”

Please leave your thoughts on this topic, or comment in any way.

May God bless your heart,

Lisa