Nathan DeLay Archives - Lisa Colón DeLay

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Scroll down for the AUDIO PLAYER to hear the epsiode.

INTRO:
Today, I share a personal story as springboard for something about compassion offered in context.

Many of you might not know that my husband and I have a special needs son named Nathan. (We also have a normally-developing daughter named Gabrielle, who we usually call “Ellie”. See photos of both of them below.) It’s been very arduous over the years with Nathan’s myriad of challenges and a strain on the whole family in many ways. To those friends, teachers, family, and others (too many to name) who have been helpful and supportive over the years, we say “thank you”.

What I am sharing today relates mainly to Nathan finding rich connection, friendship, or being truly accepted among his self-identified Christian/church going peers. Acceptance is a challenge for many typically developing children and teens. Children and teens by nature are immature, so I don’t (and didn’t) expect things to go perfectly!

His story is far from unique and neither is my pain as his parent watching it unfold. In a Christian setting, we’d like to think that rejection doesn’t happen too much because children might be influenced by church teachings and leadership. Or, Children and teens might be influenced by their Jesus-loving parents to act in ways that loving receive others with equality, but that was not our son’s experience.

When “being a mascot” is the best your child can hope for in terms of acceptance (that is to say that being ostracized is normal and being treated as a ” ‘Hey there little buddy!’ mascot” is a more rare but rather humiliating experience), your context as a family, how you help your child cope, and who shows up as your salvation, can take a surprising turn.

This personal story is the springboard for a deeper reflection today: about how we find our way in the world, make life better for ourselves and others, and maybe find some healing in the process.

What our family’s experiences showed me was that we can provide for others best out of the context from which we come, eventually. Examining those needs, hurts, and context can (possibly) yield a harvest of “good fruit”, eventual healing, and service to others. And maybe (with some new awareness), as we become more mature we can be increasingly mindful to ways we distance ourselves from people we fear. We also distance ourselves from people who unconsciously reflect parts our own weakness or insecurities back to us, and sometimes we distance ourselves from others we deem un-preferred to our sensibilities (or our cultures’ sensibilities) and are unlike us. If we can begin to see this, it’s a start.

• Thanks for listening today! Blessing and peace.

See the show notes below for my two previous fantastic conversations on the theology of disability and hospitality from Dr. Thomas Reynolds. He offers some truly inspiring and enlightening things in these areas that are likely to be completely new ground for you and your community.

AUDIO PLAYER:

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Podcast: Play in new window | Download (Duration: 15:03 — 20.7MB) | Embed

SHOW NOTES:

This is Nathan.

Pictured in photo: Nathan, his friend Cori, Nathan’s sister Ellie, and Luna–our dog.
A little bit about Nathan: Nathan loves to make videos on his youtube channel about trains, how-to videos, and animation videos. He loves working at his part-time job (large scale yard work), spending time with friends, making things from soda cans, drawing, playing with Luna, and coming up with fanciful business ideas. He also enjoys posting on his Instagram account. You can follow him on those outlets and encourage him, if you’d like. He loves connecting with new friends and fans. (And if you send him train video footage or interesting video script ideas he might try to create new videos with them.)

Nathan’s video channel trailer:

More on the the study and theology of disability and hospitality.

Tom Reynolds – Part I

Tom Reynolds – Part II

Thank you so very much for listening today.

Hear other recent episodes:

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My son, as many of you know, is autistic. Change is very hard for him. He exemplifies what many of us feel at times of change, but in the extreme.

On Saturday, when he was away at a therapy program, we had to scrap our Toyota Paseo of 13 years. It was 17 years old, ran well over 169,000 miles, and finally the engine went.

Nathan had wanted to clean and fix the car (himself), and when he saw it was gone, it broke his heart, and he cried a broken-hearted cry for quite a bit. Yesterday, at breakfast he sang a song, of mourning,

“I miss you Little Car. I miss you so much. I miss you Little Car, I do…”

We salvaged the license plate, and he was happy for this. He colored two pieces of paper similar to the color of the car, and had Tim, my husband, attach the plate to it. Today, he took it to school to show his class, and tell the tale. It seemed to bring some closure for him, even as we discussed these plans.

Even though change is inevitable, it seems to me that some ritual is important to journey through change. Nathan is a good teacher. He feels things very deeply, and sometimes his tenderness, even towards machines, reminds the rest of us, that bonds can grow tight, and separation hurts the heart. It’s not something to just “get over,” but rather something to swim through, like mud, sometimes.

Below are some pictures of Nathan’s friend, and our family transportation for the last 13 years, The Little Car.