Tag: disability studies

Episode 21 (PART II Tom Reynolds) “Care isn’t so much “doing for” but “being with”

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Tom Reynolds
Tom Reynolds, PhD

 

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Shownotes: PART II
A conversation with Vulnerable Communion: A Theology of Disability and Hospitality, author Tom Reynolds

 

Bio:
Tom joined the Emmanuel College (part of the University of Toronto) faculty in 2007. He is committed to an interdisciplinary, practical, and relational vision of theology, and his teaching and research address a range of topics related to constructive theology (particularly the doctrine of God and theological anthropology), theological method, intercultural and interfaith engagements, contextual theologies and globalization, philosophical theology, disability studies, and the thought and influence of Friedrich Schleiermacher.

His recent Articles

Email: tom.reynolds@utoronto.ca

MIN 00:30

Tom on Theodicy – The question of why does God allow suffering and how should we think about suffering.

1:00

How would Tom, as a theologian answer the question, “Why would a sovereign God allow a person to be born disabled and encounter such suffering?”

2:20

The Why questions and the answers are messy, ongoing, and evolving. These answers are limited and open to ongoing revision.

3:00

Reframing needed. Question the question and its suppositions about seeing suffering first and foremost as the issue.

3:40

If we are pitying a disabled person and seeing them how we would interpret suffering, we might be off base.

4:10

Exclusion as suffering. Social suffering is something we can alleviate as the church or community.

4:40

Tom on the central questions of Theodicy.

5:30

What would a good world be? Interdependent and that holds up the preciousness and fragility of life and human experience as valuable. Good things can be fragile things.

6:30

Does God cause suffering and determine it? Maybe it’s (all) unfolding for us in mysterious ways.

7:40

Book of John, chapter 9: The man born blind.

Who sinned? (disciples of Jesus thinking of blindness as a curse)

So the glory of God can be revealed. (What might that mean that we haven’t understood yet. [Lisa])

The story is less about curing the disabled and more about reveal Jesus’ power and legitimacy as the Messiah.

9:20

NT Wright author of Evil and the Justice of God

(on the Problem of Evil)

• God as the Incarnation steps into human suffering as a means to assuage it and also, in that, provides us a model for how to encounter it in the world ourselves, practically speaking.

The answers to suffering can become “incarnational”, not cerebral and (held) at a distance.

12:00

The why questions signal a (good) unsettledness which can be productive…

12:20

1. God is bigger than our questions and we should feel free to engage in dialogue with God and each other about God.

2. And because it calls us to live into the world and the lives of people will engage who ask, “Where are you?” and we can be there in presence and not (just) with answers.

13:00

“being-with”

(The heart of Incarnational living.)

13:30

In many cases God’s own presence is us to each other.

14:00

“Care isn’t so much “doing for” but “being with”.”

15:00

1 in 5 families regularly encounters a serious disability of some kind.

15:30

We (as a family) chose to continue to come to church even though it was sometimes messy so he (and everyone) could figure out how to make it work. (Lisa)

16:00

How can people in Christian Communities or leaders in Christian communities do better when it comes to being truly hospitable  and caring well for people with disabilities.

17:00

Training ministers to come along side is important.

17:30

In his mission and intro to Theology class, what is framed is practical wisdom lived out in relationships of caring regard with other people. (not in the academic halls or in isolation).

18:00

On developing the perception to see/understand differently and to see places where people have been harmed by certain ways of seeing these…like the healing narratives…illness as curses from God, or metaphors of seeing and hearing language and attitudes (able-ism) for example.

18:50

How to show consideration:

Asking before you assist someone. Or asking how you can best help and not presuming that you know (or know better).

Listen first, then do.

19:30

Ministry doesn’t have to be deficit-focused to the “needy”…but rather possibility focused.

As all people of resources and gifts [are] welcome among the community…this turns things upside-down.

20:30

Think of people as sites of wisdom that help a community of belonging.

21:00

1 Cor 12:25

Members having the same care for one another. All can care and contribute.

Living out the image of God with shared affinity.

22:00

Transformative and vulnerable communion within our communities…being together.

23:20

[There is] dignity in participation. (Lisa)

Allowing people to serve along side means that we are equal.

25:40

Equality isn’t sameness. Difference doesn’t mean a hierarchy.

27:40

(Tom) Music is my therapeutic other life.

 

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Episode 20 – Puncturing the Illusions of our own Ableism and Flawed Ideas of Normal (with Tom Reynolds) part 1

Tom Reynolds
Tom Reynolds, PhD

 

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Shownotes: PART I
A conversation (in 2 parts) with

the author of Vulnerable Communion: A Theology of Disability and Hospitality, by practical theologian Tom Reynolds

 

Bio:
Tom joined the Emmanuel College (part of the University of Toronto) faculty in 2007. He is committed to an interdisciplinary, practical, and relational vision of theology, his teaching and research address a range of topics related to constructive theology (particularly the doctrine of God and theological anthropology), theological method, intercultural and interfaith engagements, contextual theologies and globalization, philosophical theology, disability studies, and the thought and influence of Friedrich Schleiermacher.

His recent Articles

Email: tom.reynolds@utoronto.ca

MIN 4:00

Incorporating the theology of disability into his work training pastors at Emmanuel Seminary, because theology is personal, and not disconnected from the real world concerns of the church and people living their lives.

4:30

About his son Chris sparking his interest and work in the theology of disability.

5:30 Learning that disability isn’t a problem to figure out, but rather it’s about a person who I love and live with, and care with and for, which radically reoriented my perspective on theology.

5:50

Disability and God’s Providence

(Questioning does God “cause” disability as a curse or opportunity for healing…or a kind of moral lesson…)

6:30

His son exploded the theological categories (and assumptions) pertain to Providence…making everything confusing and needing to be re-thought.

7:00

What is abnormal? What is “faulty” humanity?

Amos Yong, Hans Reinders, John Swinton writing on the topic too.



8:15

Tom details the new book on the Theology of Care which builds on the first book.

8:40

Some churches stress Cure over Care in terms of disability.

8:50

(Lisa) My visit to a church where the leadership was interested in healing my son from his non normative experience of the world.

10:00

The range of responses churches have when encountering people with disabilities.

The  church’s “urge to cure” is better than outright exclusion, which plenty of families have encountered.

11:00

It comes from the the idea of remaking and fixing someone in a way that is more comfortable for non disable people and normalcy (what they consider normal). Not helpful or Christian.

12:00

About the church that didn’t want his son as a disruption and a church that did receive them.

13:00

“How can we help you?” was water for his parched soul. How the church accepted and welcomed the uniqueness of his son.

14:15

Hospitality vs. a narrow view of what is preferred.

15:00

The messiness of various kinds of people, in general, means we have to expand our view of grace.

15:30

Who gets to be a full-fledge member of the church community?

and the “mascot syndrome” for those with disabilities.

16:30 – 17:50

Levels and types of responses:

• Tolerate disabled, but they do not get to be a true part of the church.

• “Inclusion” sometimes means means the the “outsiders” get invites to the inside group based on the good graces of the in group, but are still treated as problems to be solved, or people that are to receive the gestures of charity from others (people for whom things are “done for (them”)”. Doing for instead of “being with”.

18:00

What is access? In is not just accommodations (i.e. ramps and special bathrooms) and alterations but ongoing…

Faith communities may be not expecting and not ready to receive those with disabilities.

18:30

It’s not an issue about outsiders, because disability extend to a broad range of issues, both visible and not visible, including mental health challenges that are already there.

18:50

Thinking of the word “BELONGING”

as in “to be longed for when you aren’t there in the fullest sense.”

John Swinton and belonging

19:40

Jean Vanier “In giving and receiving do we really thrive as people”

20:30

Unconscious bias that includes “fear of the stranger” and “fear of the stranger within”.

21:00

We fear weakness and vulnerability.

21:30

Before “mainstream”…the stigma of “retard”…and fearing and disposing weakness.

22:20

Nathan means gift. (Lisa) I learned that I had to recognize weaknesses (shortcomings) in myself the I saw reflected in my son…and communities can do the same type of thing unconsciously.

23:00

“The encounter with disability punctures the illusions of what we think of as our own strengths.”

23:50

The journey with a child with disabilities is isolating.

25:30

Societal epidemic that fears being vulnerable or perceived as weak or unable to perform in ways that are considered valuable by society.

26:00

We have to see what are myths about autonomy, independence, and productivity where are assume we are self-reliant and these qualities are prized so highly. “Able-ism” (The idea that being able in body and mind is normal and most vital which serves as the lens by which we see and judge the world and others outside those parameters as faulty.)

27:00

Tom’s latest work called “A spirituality of attentiveness”. Christianity: St Paul’s strength in weakness serves as a prophetic witness against a society that prizes the strong as the main thing of value. 1 Corinthinians pretense of strength undercuts our ideas of grace)

29:20

We are all only temporarily-abled. (Lisa).

31:00

On hearing “You must be so blessed to have a disabled person as a teacher.” Is this sometimes a reframing of the situation that spins the situation to be more palatable? A glossing with spiritual truths and making it about spiritual growth.

31:20

Instead, Chris’s life seeks its own flourishes, and he may at times function as a teacher.

33:00

Thoughts on intellectual ability (or inability) and belief in terms of Salvation.

God’s works God’s own path in different ways and in different capacities with people. This undercuts my arrogance (as a theologian), so I don’t think I can so easily map it out definitively and universal for all people in all places.

34:00

His son’s atheism (who is the God he doesn’t believe in)…and how that challenges our presuppositions about God.

34:50

“It is in the kind of relationships of mutual belonging that the full image of God is borne out.”

35:30

(Lisa) To my son I said, “when you see someone who is loving you, you are seeing God.”

(Lisa) On how I changed from thinking “right belief” as the way to understand God was central. Our intellectualizing what God has done is not salvific.

38:00

Martin Luther’s theology of the Cross:

The pretense that we know exactly where God is and how God works. Where God is most hidden is where God is most vividly revealed in saving ways.

38:30

“Who I am to declare that God’s grace only works in some ways? and the God’s capacity and God’s own mystery is limited to what I would deem and my community would deem adequate.”

39:30

What the practical theology of disability tells us about Grace with God and relationships with others.

40:00

“The longer I live and work as a theologian the more I realize the limitations of theology and the true infinite mysteries of God.”

Jesus was disruptive to religious pretense and suppositions. “You say this..but I say this…”

Theodicy – The question of why does God allow suffering and how should we think about suffering.

How Tom, as a theologian, answers the question,
“Why would a sovereign God allow a person to be born disable and encounter such suffering?” (This is great!)

The best is yet to come! Come back for part II next week.

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It’s not a broken heart that kills you…

(by Chris O Brien click for CC source)

You can’t die of a broken heart. It’s despair that kills you.

Having a broken heart, means you are alive. It means that something matters, and you haven’t gone numb (which is what usually happens to people after a while…or escapism, which is sort of the same).

Having a broken heart means that risk was rewarded with pain. But not pain unto death. Pain that gives way to experience you can’t find another way.

I used to think God was trying to kill me of a broken heart. Dashing my hopes and dreams. Allowing my son, or my father, or me to suffer until I couldn’t take it anymore. It felt like the beatings wouldn’t end.

At the end of that bit of brutality (as I perceived it) I realized I could be borne out of it, like a phoenix. And that was the point. To come to a resurrection. On the other side was life, not death. All the scars would be a kind of beauty, not a pitiable shame.

Don’t worry about your broken heart. It has to break apart to get to the fleshy part. The part so tender that only God can hold it…and be the only one who can and will protect it in a way you never could understand before. In a way that you can never do alone. You are brave enough for that. You. are.

Do. not. despair.

Juvenile Atheism, and Bunny Studies. (a profound update)

Nathan is my little bunny

I have been observing the spiritual journey of my autistic son, Nathan, quite closely for the last three or four weeks. If you haven’t been following the posts about it, here, this is the short version of the backstory:

Nathan, as of a few months ago, professed to not believing in God. This is a  change from his former beliefs. He now claims that God, the Bible, and the stories of Christianity are “unbelievable stories,” as he says. It’s fake. A fraud.

The undertaking
To me, it seemed like the perfect time to more closely explore spiritual formation (a.k.a. discipleship) and theology as it pertains to disability. Besides encouraging Nathan in his spiritual formation (no matter how messy or personally unsettling or uncomfortable), I’ve hoped to learn from him, and share my findings. This includes studying on the theology of disability, and documenting Nathan’s time of exploration, with respect for my son’s unique spiritual growth process and experience of the world. For my readers, I’ve hoped to encourage deeper thought and consideration about spiritual growth, and the nature of God.

Where things are now
My attention to Nathan’s beliefs and journey, and the recording of them have reached a blockade. Nathan has expressed that he does not want to be filmed, and wants to not speak about the subject. He’s not ready to go about things this way. I will respect this. His basic sentiment is emotional, and preferential, not logical or given to dialogue. So, I will to put this closer study (at least of him, in a personal way) on hold, until a time comes when it seems productive to pick up with it again. I’ll post about it, occasionally, as insights, changes, or advancements occur. This story is far from over.

Bunny Studies
I got up early this morning and went out on the porch with my coffee to enjoy the unseasonably mild morning weather and take in the sights of the creatures that are neighbors with us. We have a few nests, some very vocal birds, several rabbit families, and a very clever chipmunk who has constructed an elaborate series of tunnels that I suspect could be a secret lair. This morning I saw him enter and leave two different homes, scale a brick chimney, shoot into the roof gutter, and out of sight, maybe to the attic of my neighbor’s home. Clearly, he’s up to something.

I saw a mother rabbit and her bunny nibbling at the dewy clover. They were relaxed in their surroundings, and quite hungry. It made me think of one of my favorite children’s stories: The classic called  The Runaway Bunny by Margaret Wise Brown. The bunny hopes to be free from his mother, and tells her all the ways he plans to runaway. The mother rabbit does not tell him stay, but rather shows her steadfast love for him. She accepts his wild heart. She comforts him. For every idea he shares about leaving, she has a plan to love him faithfully and reunite with him. This story was refered to in a theological way profoundly in a  film I saw called Wit starring Emma Thompson. It’s a movie that changed me, and help me see God, better.

Wit was adapted from the play W;t, by Margaret Edson. ( In the context of the play, the semicolon refers to the recurring theme of the use of a semicolon versus a comma in one of John Donne’s Holy Sonnets.) Wit won the 1999 Pulitzer Prize for Drama. The main character, Vivan, a college English professor, is dying of ovarian cancer. At the end, Vivan’s admired, former-professor and mentor comes to visit while she is in town for her great-grandson’s birthday. She comforts her and offers to read to her a Donne sonnet. Vivian, scarcely conscious, declines. So instead, Dr Ashford reads from Margaret Wise Brown‘s The Runaway Bunny, which she had bought for her great-grandson. She remarks that it offers a lovely “allegory of the soul”: Wherever the soul tries to hide, God, comfortingly, will find it. (This section was taken from Wikipedia. Read it in full, here.)

God is our Mother Rabbit. For my son, I am a flesh and blood representation of God to him. I am his mother rabbit, and his is my beloved bunny.

I realize, even more thoroughly than I had realized before, that part of growing up includes the professions of and steps toward independence. Perhaps consistent love faithfulness are the most helpful things we can offer children who are not yet mature enough to make their own way in the world.

Thank you for coming along for this leg of the journey. Your thoughts or comments are quite welcome here.

(Nancy Eiesland) 'The Disabled God' -How do we define "normal"?

In reality, all of us “healthy” or “normal” people can more aptly call ourselves, “the temporarily able-bodied.”

Theologian, sociologist, and author Nancy Eiesland was wheelchair bound since childhood. She surprised many when she said she hoped to be disabled in heaven. She died at age 44 of congenital lung cancer, but not before she made huge inroads for the Rights and Dignity of the Disabled, and penned a groundbreaking book about understanding disability, and suffering, in light of God, and his nature.

Nancy Eiesland 1965-2009

Article excerpt on Eiesland from the “Scotsman” publication:

By the time of her death, Eiesland had come to believe God was disabled, a view she articulated in her influential 1994 book, The Disabled God: Toward a Liberatory Theology of Disability. She pointed to the scene described in Luke 24:36-39 in which the risen Jesus invites his disciples to touch his wounds.

“In presenting his impaired body to his startled friends, the resurrected Jesus is revealed as the disabled God,” she wrote. God remains a God the disabled can identify with, she argued – he is not cured and made whole; his injury is part of him, neither a divine punishment nor an opportunity for healing. FULL ARTICLE HERE

Toward a Liberatory Theology of Disability