Sarah Bessey writes at Emerging Mummy where she has become an accidental grassroots voice for postmodern and emerging women in the Church on issues from mothering to politics and theology to ecclesiology. Her writing has been well received in many publications including Church Leaders, Relevant Magazine, A Deeper Story, SheLoves Magazine, and Emergent Village. Sarah also works with Mercy Ministries of Canada, a non-profit residential home for women seeking freedom from life-controlling issues. She is a happy-clappy follower of Jesus and social justice wannabe. Sarah lives in Abbotsford, British Columbia, Canada with her husband, Brian, and their three tinies: Anne, Joseph and Evelynn
Hey, everyone! Lisa, here.
I’m happy to include a lovely person, champ blogger, and Canadian beauty– the one, the only: Sarah Bessey. I could tell you that I love Sarah and that I love reading her blog, but then you would just think, “Duh? Who doesn’t, Stupid?!”
Yesterday, she had a gracious response to the flap about under-represented female bloggers by posting her own list, which you can check out with her handy dandy button (link):
So, I’ll just use this valuable spot, after the 50 Button and before the letter from Sarah (yes, it’s beachfront property, baby) to encourage you to sign on for RSS or email updates for continued awesomeness. Lots of great writers are my splendid guest contributors ( a.k.a Series #4Bloggers ). My first ebook comes out May 1 “Soul Care for Creators and Communicators”. It’s free (until NOV 2012) if you sign up for it here. (It too is part of the awesomeness. More on that in the coming days and weeks)
And now, enjoy!
FROM SARAH
Dear Blogger:
There are so many ways to be a better blogger, to increase your traffic, to maximize your SEO, to make money.
I practice almost none of them.
After nearly 8 years of writing my life out online, I’ve made almost every mistake one can make. I’ve learned the hard way to write angry, but publish when I’ve calmed down. I’ve received my fair share of angry criticism and lavish praise. I’ve been convinced that I’m God’s gift to the blogosphere and, usually within a few moments, pretty sure that my blog is an abomination upon the earth. And I discovered that what is good for the Google analytics isn’t always good for my soul.
In the midst of the reactionary, often inflammatory, competitive, over-saturated, addictive world of online writing, I repeat to myself, “Remember who you are, Sarah.”
That simple phrase has helped me decide what to write and what to publish, what to leave to other bloggers. It’s helped me focus my content, reconcile my values with my work, make decisions about blog growth tactics, advertising opportunities, networking or relationships. It’s helped me not to crash into despair when someone emails with harsh criticism or fries me up in their own blog post as a “response” served with chips. And it’s also helped me not to get too full of myself when praised, I’m very well aware of who I am and, as every one that knows me in real life can attest, I’m disgustingly normal with flaws and frustrations.
But even beyond the world of blogging, that phrase has helped me make decisions about my priorities and values. It’s helped me to shut the computer down most days, to go outside with my tinies, to make space for spiritual disciplines like silence and secrecy, to make cookies instead of nasty comments. It’s helped me to engage in the hard work of real, skin-on community, to put my physical hands to justice and mercy, to rock my babies to sleep.
“Remember who you are” means remembering that I’m more than a blogger. I’m Brian’s wife. I’m Anne and Joseph and Evelynn’s mummy. I’m my parents’ daughter, my sister’s best friend. I’m Auntie-Mama to my little nieces. I’m someone who would rather eat popcorn for supper.
And beyond all that, it helps me remember: I walk in the ways of Jesus. I am a peace maker. I am committed to speaking Love as my first language. I am an advocate for Mercy. I am a grace-receiver, a forgiver, a woman after God’s own heart.
So my friend, remember who are. In the midst of the blogging, beyond the blogging, and through it all, remember this: you are loved, you are loved, you are loved.
I Corinthians 12:22 In fact, the parts of the (church) body that seem weakest and least important are the most indispensable.
1 in 5 homes has a person with some kind of disability living in it. But they are not a statistic. They are a family who needs you. Sometimes I hear people say, “I’d really like to help, but I don’t know where to start.”
With so many needs, it’s easy to feel overwhelmed. But, one’s time and resources to help the disabled needn’t be expensive or difficult. The most important thing is showing up and allowing yourself to be used by God.
Many times those families in need want to know someone really cares, more than anything. They probably won’t be able to reach out and ask you for help, in the middle of struggling with their circumstances, but even small and simple efforts can bring them help, joy, and comfort.
Don’t start with a disability. Start with a family.
A Visual Guide to Ministry with the Disabled
I encourage you to use this Visual Guide to Ministry with the Disabled poster. I created it to help ministers and compassionate Christians aid the disabled in crucial ways. You can access it here. Please contact me if you have questions about it. This guide works through a logical progression of needs, and leads up to interdependence, mutual care and ministry, which is what the Kingdom of God is all about.
This Visual Guide may be printed and distributed as needed, and is under a free use Creative Commons license that you see below.
Nathan is weird. Embrace it! (Pssssst. You’re weird too.)
I’m taking a Theology of Disabilities course right now. I have to admit that some baggage that I didn’t realize I was carrying has gotten heavy. I’m putting it down, starting now. The truth is, I realize I have felt disappointed by the church, and by my church. I’m hurt that the church has failed so badly in helping the disabled (specifically my disabled child) feel like they really belong. It’s not just about allowing the disabled to be there near us, it’s about really knowing them, and really appreciating who they are, because God made them, and they are valuable.
Ya see, times have changed. When I grew up in the 1980s, we’d all make fun of kids that “rode the short bus”…maybe not to their face, but imitating “Tards” was something I excelled at. I was hilarious. I was the disabled one, if we’re telling the truth here. I was spiritually retarded. God gave me a precious gift in my son to show me God’s true heart. To show me my true humanity. The disabled personify the weakness we avoid. Nathan helps me get over my human/secular and foolish ideas about what it means to belong and be successful in God’s worldview.
Here’s the other cool thing. God gave me Nathan to share with you, too!
I think, my generation still fears the disabled. I doubt many will dare admit it. (It’s not politically correct, and we can’t look like uncaring jerks, right?) To most of us, the disabled are still a stigmatized and strange group; and we don’t know what to do with them…we don’t know what to do around them…we aren’t sure what they need. It’s all quite uncomfortable. Gosh, we are so glad we are not them. And we’re afraid. Afraid of the unknown and the unfamiliar, and the “other”.
Here’s the surprising twist. Our (non disabled) kids don’t have the same mentality. They don’t. Over the last 10-20 years, those with disabilities haven’t been sent away to special schools. They have been included, or in far closer proximity to typically developing children. The secular, public schools have outdone, and surpassed the church in this area of grace. They have honored and accepted disabled kids more than the church.
Please. Read those 2 previous sentences again…Slowly. Okay, never mind. I’ll just state it again: They (secular institutions and those who are a part of them) have honored and accepted disabled kids more than the church has.
(Yes. You should feel convicted right now. Even crying wouldn’t be over-the-top.)
As a Parent:
As the mom of a disabled child, I find that typically developing children, with just the a little bit of prompting or advice, adjust very well to interacting with my son, as if he’s a real human being who desires friendship. They even enjoy him! (It’s not just charity. It’s reciprocal friendship. It’s the kind of relating where everyone wins.)
On the other hand, I find that it is the parents of these (non disabled) children who are fearful, and unwilling to engage with my son, beyond the superficial. They are fearful enough to not help their child build friendships, or regularly interact with a disabled peer, or near-peer. They don’t create an easy opportunity for their child to grow, learn and become more compassionate. They don’t make it priority. As a child’s primary guide, this is a gross failure.
Church: But this is different at church, right? It’s a place of acceptance, and hospitality, and belonging, right? God’s love is shown in tangible ways, right? WRONG. My son has more meaningful relationships and friendships, and more grace shown to him with non Christians, in secular (even godless) environments, and with neighborhood children. (See, the government schools have been telling these kids that atypical kids were worth interacting with.)
KIDS @ PLAY
Once upon a time, I bemoaned to a woman at church the fact that Nathan had no friends at church, no meaningful interactions with any church children, no invitations extended to him to play with them, go to their birthday parties, or even watch a movie together (even after we had make a lot of efforts to create those situations and occasions). Her reply, “Well, I can’t force my kids to play with certain kids, and to like certain friends.”
I listened to her statement, and I didn’t really know what to say. This mom was prominent in the church. I didn’t challenge it. Upon reflection, I should have said, “LIKE HELL YOU CAN’T!”
As parents, we do it all the time. We curb or we encourage friendships for our kids regularly. Do we let our kids hang out with teenagers on the corner who are smoking? Uh, no. Does a naughty and petulant child get to sleep over? No. What about the children who bite, hit, or cuss? Do they get to make cookies in our kitchen with us? Nope. We influence our kids all the time. The fact is fear stops our hospitality. We stick with our comfort level, and pick our favorites.
I’m here to tell you that God has given us these different sounding and acting people as gifts, to teach us so much, but we don’t choose to interact, learn and be gracious.
“But I can’t find a disabled kid… What am I supposed to do?”
Well, try harder. Open your eyes. Ask around. Do you want the truth? The facts? Here they are: Do you live near 5 other homes? If you walk down your street, and pass 5 homes, 1 of those homes will be effected by disability. 1/5 of families are effected by disability everyday.
Do you know more than 6 children? If you know 6 children, 1 of them is likely to have a form of autism, or developmental issue.
Sometimes, I hear this: “Is it my job? How can I be responsible for knowing other people’s needs. I’m just not in their shoes.”
Yes. It’s your job. A frequent reason (or cop out) is saying that the parents of disabled children should just say what they need, and make the efforts to get their kids included. BULL CRAP!
Just thinking up a list of wants and needs would sound exhausting to a parent of a disabled child. Some days, they are just trying to make it through the day without losing their minds. Over 85% percent of marriages don’t survive when a child has a disability. It’s tougher than you think it is.
Listen. These parents have enough to deal with. Wake up! They have enough to do than to also make sure typical children are accepting and relating to their disabled kid/s. Mostly, they are tired. It doesn’t feel worth the effort. Failure seems sure. They are surrounded by frequent disappointments, the broken dream of not having a normal kid, and lots of scheduling issues and therapeutic measures in school, community, and other locations that help their kid or their family. They don’t have enough energy to get people on board with that type of stuff on top of everything else. (Ask them what a typical week is like, go ahead.)
YOUTH GROUP
My son went from being very excited to be old enough to be included in the middle school Sunday School section (See, in 5th grade…you get to sit on cozy couches!!) to now, about a year later, in 6th grade, detesting Sunday School, feeling like an outcast (even more than he had before), and now he doesn’t even believe in God. He says, “God is an unbelievable story.” It must seem like a fairy tell because he doesn’t see the love of God displayed toward him.
Based on the way many Christians behave toward him, he has an excellent point.
Like plenty of other children with autism or developmental disabilities (BTW…”developmental disabilities ” is nicest term for “retards” or the “mentally retarded”), Nathan doesn’t get abstract ideas like, “Is Jesus in your heart?” (He hears, “Is a bearded man in your chest cavity?” Utter nonsense!)
Nathan can’t see or touch Jesus; we have to be Jesus for him. He has to experience love-in-action, benefit from it, and be allowed to return this love as an equal. I don’t know if it’s too late for my church to be hospitable in the way that he’ll to want to be a part of it. I will keep that hope. I’m writing this now to start a change in how we respond and interact, so other kids with disabilities can feel like they belong, and are loved and accepted.
TIPS to get you started (for kids and adults) • Interaction doesn’t have to be hours of incredibly awesome friendship per day or week. A blood brother bond is not necessary. But, the interaction should be authentic, not out of duty or pity. Something simple like making something for them, sharing something, or just chatting pleasantly with them is plenty for starters.
• Asking about their interests (direct questions are best, maybe even just asking “yes or no” questions, at first), and then actually listening to them (even when you may not always understand them or know what to say) is helpful. They WILL understand when you care about them. Just take a bit of time to be gracious. It’ll do you good.
• Inviting them over for a snack, to watch a movie, take a walk, ride bikes, play with your pet, or play videos games may be enjoyable for them, and of course invite the family if possible. Ask if you can visit them. Create times that are specially for them, even if they are brief periods. 30-45 minutes is fine. (But realize they will love you for it, and want to do it again soon. My son never seems to stop talking about the boy we invited over to play, about 2 months ago.)
• Offer them yourself. Nothing fancy. Invest in them for real, emotionally, and with some of your time and efforts. When you offer authentic friendship it looks different than just a saying or doing the “right thing”. You take a risk.)
• Help them make a craft, picture, or a simple snack, play a game, look at a book, build with legos, and take the time to talk to them, or just be close by and attentive, etc. and show them you like them.
• Offer the parents of disabled kids respite time. Give them an hour or two break, and get the help, information, and extra helpers you may need to care for the child. (Only 10% of churches do this. Change this statistic.)
• Be inviting. What’s the worst that could happen if you invite a family over to your house? Maybe the child will do something unpredictable, and you won’t know what to do? Maybe you will feel uncomfortable? Get Over it.
MOVING FORWARD:
Where and how have you seen the disabled as full-fledged participants in your community or ministry? (How was it done rightly?)
AND–
How can I help you? If you want to show kindness, or God’s love to a family of a disabled person, or to a disabled person, What are your questions or concerns?
What about including or interacting with the disabled would you like to know?
What are your fears? Share them.
Let’s get this ball rolling. No question is off limits. Your comments, or experiences can be shared as well.
Thanks for reading. Thanks for changing for the better. -Lisa
I have been observing the spiritual journey of my autistic son, Nathan, quite closely for the last three or four weeks. If you haven’t been following the posts about it, here, this is the short version of the backstory:
Nathan, as of a few months ago, professed to not believing in God. This is a change from his former beliefs. He now claims that God, the Bible, and the stories of Christianity are “unbelievable stories,” as he says. It’s fake. A fraud.
The undertaking
To me, it seemed like the perfect time to more closely explore spiritual formation (a.k.a. discipleship) and theology as it pertains to disability. Besides encouraging Nathan in his spiritual formation (no matter how messy or personally unsettling or uncomfortable), I’ve hoped to learn from him, and share my findings. This includes studying on the theology of disability, and documenting Nathan’s time of exploration, with respect for my son’s unique spiritual growth process and experience of the world. For my readers, I’ve hoped to encourage deeper thought and consideration about spiritual growth, and the nature of God.
Where things are now
My attention to Nathan’s beliefs and journey, and the recording of them have reached a blockade. Nathan has expressed that he does not want to be filmed, and wants to not speak about the subject. He’s not ready to go about things this way. I will respect this. His basic sentiment is emotional, and preferential, not logical or given to dialogue. So, I will to put this closer study (at least of him, in a personal way) on hold, until a time comes when it seems productive to pick up with it again. I’ll post about it, occasionally, as insights, changes, or advancements occur. This story is far from over.
Bunny Studies
I got up early this morning and went out on the porch with my coffee to enjoy the unseasonably mild morning weather and take in the sights of the creatures that are neighbors with us. We have a few nests, some very vocal birds, several rabbit families, and a very clever chipmunk who has constructed an elaborate series of tunnels that I suspect could be a secret lair. This morning I saw him enter and leave two different homes, scale a brick chimney, shoot into the roof gutter, and out of sight, maybe to the attic of my neighbor’s home. Clearly, he’s up to something.
I saw a mother rabbit and her bunny nibbling at the dewy clover. They were relaxed in their surroundings, and quite hungry. It made me think of one of my favorite children’s stories: The classic called The Runaway Bunny by Margaret Wise Brown. The bunny hopes to be free from his mother, and tells her all the ways he plans to runaway. The mother rabbit does not tell him stay, but rather shows her steadfast love for him. She accepts his wild heart. She comforts him. For every idea he shares about leaving, she has a plan to love him faithfully and reunite with him. This story was refered to in a theological way profoundly in a film I saw called Wit starring Emma Thompson. It’s a movie that changed me, and help me see God, better.
Wit was adapted from the play W;t, by Margaret Edson. ( In the context of the play, the semicolon refers to the recurring theme of the use of a semicolon versus a comma in one of John Donne’s Holy Sonnets.) Wit won the 1999 Pulitzer Prize for Drama. The main character, Vivan, a college English professor, is dying of ovarian cancer. At the end, Vivan’s admired, former-professor and mentor comes to visit while she is in town for her great-grandson’s birthday. She comforts her and offers to read to her a Donne sonnet. Vivian, scarcely conscious, declines. So instead, Dr Ashford reads from Margaret Wise Brown‘s The Runaway Bunny, which she had bought for her great-grandson. She remarks that it offers a lovely “allegory of the soul”: Wherever the soul tries to hide, God, comfortingly, will find it. (This section was taken from Wikipedia. Read it in full, here.)
God is our Mother Rabbit. For my son, I am a flesh and blood representation of God to him. I am his mother rabbit, and his is my beloved bunny.
I realize, even more thoroughly than I had realized before, that part of growing up includes the professions of and steps toward independence. Perhaps consistent love faithfulness are the most helpful things we can offer children who are not yet mature enough to make their own way in the world.
Thank you for coming along for this leg of the journey. Your thoughts or comments are quite welcome here.
Things have been sort of heavy around here lately, with Lent, and Jesus dying and everything. Easter-wise, I think we’re in “tomb time” at this point. It’s where Jesus is physically dead from execution. Everybody in Jesus’ world has had a super crappy day. They put him in the ground, and seal it up. He’s dead. Their hearts and dreams are broken and shattered.
Jesus is in paradise or Hades… or maybe someone should explain that to me…hang on… Okay. Checked on that. If that bit is confusing to you too, try this article. (Then get back here, before I lose my train of thought.)
Anyway, I’m writing this from home. No. I should say, I’m writing this from a place where my mother lives, and where I spent a few college breaks, and one horrid 6 week summer stint before I got married almost 16 years ago. So, actually not home at all. There’s a dislocation all over.
My mom still lives here. It was her late husband’s house. A guy who wasn’t my father.
There’s a guy here, now. I call him Jerry, she calls him fiancé. They met on the computer, in February. I thought he would go back to his place by now, but it’s almost 11pm, and he’s still hanging around. We’re slated to see him, at his place, tomorrow, and most of Sunday, here. Trust me, it’s weird to be in my head, right now.
It feels much like I’m the protagonist in a very awkward Ben Stiller movie. But I haven’t had a chance to figure out my lines. The plot is sketchy. The characters are underdeveloped. I wouldn’t be able to explain it all, even if I tried. But, this picture may reveal much of what I can’t. (I’m the one on the left.)
(me with mom)
Kind of funny picture, no? Laugh for me, if you can.
So, I ate my feelings today. Which, in this case, means about a half a cup of Rasinets, and other sugar and carb no-nos. It feels like Tomb time. Things seem ruined, or broken, and altogether not right. I will acknowledge this.
I won’t shove it aside, or pretend I can’t feel it, see it, smell it. Life can really suck. (That’s a theological term. It means…oh nevermind.)
YET! I know this thing. Nothing can keep the dawn from coming.
I really like Easter and Spring. And well, life. Rebirth is also–excellent. Brighter days are ahead. Death has no victory. The tomb cannot keep us. Even the tomb of discontent, or broken dreams.
We are poised to celebrate life and renewal. Come, Lord Jesus.
I usually encourage responses to my posts. But this time, I’m just letting it all hang out without a care of that. You can do what you’d like, I just need to sit here for a while.
