In our darkest moments it’s difficult to shake the feeling of aloneness. God may seem so hidden.
In those worst times several things have helped me devotionally and/or spiritually. One of them is the power of community. I use the strength and prayers of others as my own. I may read (and pray) the lamenting scriptures (like Psalms) when I feel too spiritually dry or weary to pray. I agree with the prayers of others for me and hold those prayers in my heart. When I can’t find the words, or feel the feelings I’d like to I share in the source and inheritance of the community of Believers for strength that is beyond grasp for me alone.
Today, I am listing two resources that are very helpful for this. Maybe you know someone in the middle of a dark, weary, or dry time. Maybe you are there yourself. You may feel quite alone. Strangely, that feeling itself can teach us. Since God’s presence is everywhere, that potent sense of alienation that overtakes our heart can refine in us the faith that does not come through our senses. We can have a “knowing place” even if we feel otherwise numb.
The first resource book is a collection of stories from people who have felt alone in the throes of depression. Together, they harmonize in a chorus of hope, and in the reality of the provision of our Creator. I think you will appreciate their entires.
The second resource is one I’m reading now. I’ll include a few quotes, I’ve read recently, to give you a sense of the power of this book–both for understanding or ministering to those suffering from the pain of mental illness, or for a tether of grace sustaining your hope for a brighter day in recovery from your present darkness.
Forgetfulness deprives our consciousness of great solace…my memories give me hope. p 90
Any coherence in the midst of chaos, any sense in the midst of nonsense, in the work of God. p110
…[W]e really have to admit that all our love and all our hopes are ultimately borrowed for God anyway. p116
Please share your thoughts.
Do you have a song of lament today in your heart? You have permission to share it here.
Psalm 10
1 O Lord, why do you stand so far away?
Why do you hide when I am in trouble? 2 The wicked arrogantly hunt down the poor.
Let them be caught in the evil they plan for others. 3 For they brag about their evil desires;
they praise the greedy and curse the Lord.
4 The wicked are too proud to seek God.
They seem to think that God is dead. 5 Yet they succeed in everything they do.
They do not see your punishment awaiting them.
They sneer at all their enemies. 6 They think, “Nothing bad will ever happen to us!
We will be free of trouble forever!”
7 Their mouths are full of cursing, lies, and threats.[a]
Trouble and evil are on the tips of their tongues. 8 They lurk in ambush in the villages,
waiting to murder innocent people.
They are always searching for helpless victims. 9 Like lions crouched in hiding,
they wait to pounce on the helpless.
Like hunters they capture the helpless
and drag them away in nets. 10 Their helpless victims are crushed;
they fall beneath the strength of the wicked. 11 The wicked think, “God isn’t watching us!
He has closed his eyes and won’t even see what we do!”
12 Arise, O Lord!
Punish the wicked, O God!
Do not ignore the helpless! 13 Why do the wicked get away with despising God?
They think, “God will never call us to account.” 14 But you see the trouble and grief they cause.
You take note of it and punish them.
The helpless put their trust in you.
You defend the orphans.
Did you know that Church and Relationship are synonyms?
This Thursday was the second week in a row that we had a friend come to play with Nathan. Michael is a year ahead of Nathan at his school. Michael, too, has autism and its noticeable in different and similar ways (more on that some other time). He’s an only child, and making friends is tough. It’s not natural for him, but the opportunities are few as well. Together, we’re changing that.
Having him and his mom here felt like ‘doing church’ in the most wonderful of ways.Their visit warmed my heart. “Church,” in this case, means that it’s the first time in much too long where I could tell that I, no we, were living life together. We were enjoying a deeper connection and community in a natural way. In ways we all hope for when we go to church. It feels like coming home with supper waiting for you. It consists of acceptance, warts, and joys, and all. The common was somehow sacred this Thursday.
My hope it that Michael always knows he’s fully accepted and valued here. He is. I’ve made a kind of internal vow for our home to be a safe and loving place for him to be himself. He’s picked up on that. If his mom’s work schedule allows they’ll be over again this Thursday. He says, “We have a meeting.”
I’ll try to put up some video soon, because the way these two boys interact is so hilarious and sweet, and I know you’ll love it.
Make Your Home “church”
Here are some tips, if you’d like to make your home a welcoming environment for a child with autism, so a visit is something to look forward to and enjoy. (Share this information with your children.)
• Structure. Don’t expect that a child visiting will just play. Or do well if there are toys and game around. For kids, with autism anyway, most must learn simple social skills and interactions and adapt through practice. It’s really awkward at first for them. But, it gets figured out through process. You might want to create something, cook something, or play a short game, all together. Doing something with a beginning, middle, and end will add sense to the visit for them. A free play or open-ended style of interactions won’t lend to a high quality visit.
• Time limit. When Michael visits, he likes to stay for 60-75 minutes. He tells us when he wants to go. This is great, but not all kids will know when enough is enough. This can be hard on everyone involved. Plan the get-together with a defined time frame–from the outset. I suggest 45 mites to start (this depends on the child. 30 minutes for a young child might be better). Later you can move to up to 90 minutes. But play for over 2 hours, or trying for an open ended meet up can be counter-productive. A defined time slot things end on a high note, and it’s fairly easy to prepare for the visit.
• Provide goodies. Ahead of time, ask if there are food preferences or allergy issues, and then make sure to offer a snack and beverage. Food is powerful. Use it wisely.
• Ask Questions. Make an effort to interact personally a few times. Ask a “yes” or “no” question, or an “either/or” question, and indicate your interest and acceptance right away, and along the way. Don’t expect anything, just do it. If it falls flat, try again in a little bit. Be Patient. Children are more like gardens than firecrackers. (So cultivate, rather than expect a dazzling display from a brief “matching”.)
• Issues of Eye Contact and Touch We take these social things for granted and generally know what is acceptable with others, and when and where eye contact and touch it is acceptable. Many disabled children do not. They may kiss you all of a sudden, or never even glance at you. Don’t expect them to make eye contact, and don’t try to touch them unless it seems very obvious that they wouldn’t mind. (Realize that for some kids, it feels painful to be touched. Yes, painful. Same goes for eye contact.) That being said, once I’ve built trust, I find kids really appreciate and respond well to a hand on the shoulder or back, or light pressure/touch on the arm, and they warm up to me very quickly. Since sometimes others are afraid to touch them (because they’ve seen big reactions), or because they don’t have friends they interact with closely, they are sort of touch-starved. Acceptable and respectful touch will establish trust. It’s surprising.
• Notice Stuff. Maybe mention that they look good in red, they are wearing cool shoes, or that they’re getting big and strong. See them. Then, say something to let them know. This shows them that they matter to you. Make concrete comments (facts) to them, about them. It gives them a sense of personhood, or place…at the table, if you will.
• Talk to the parents. This might seem obvious, but I’m always surprised at how much the parents of disabled children feel relieved to interact and relax with conversation and company. Encourage this. They don’t often get to “feel human” because of all the stress that goes along with caring for their child. (They’re “going” or “on” all the time. It’s exhausting.)
• Follow Up. Plan ahead for the next time, soon. Set up something that day, or within a week, to have another time together. If we don’t do this, it falls off our radar. Use a pen and mark the calendar. Consistency is key.
Are you “doing church” with anyone? Why or why not?
Verse of Reflection:
Matthew 25:44-45 “Then they will reply, ‘Lord, when did we ever see you hungry or thirsty or a stranger or naked or sick or in prison, and not help you?’
“And he will answer, ‘I tell you the truth, when you refused to help the least of these my brothers and sisters, you were refusing to help me.’
Nathan is weird. Embrace it! (Pssssst. You’re weird too.)
I’m taking a Theology of Disabilities course right now. I have to admit that some baggage that I didn’t realize I was carrying has gotten heavy. I’m putting it down, starting now. The truth is, I realize I have felt disappointed by the church, and by my church. I’m hurt that the church has failed so badly in helping the disabled (specifically my disabled child) feel like they really belong. It’s not just about allowing the disabled to be there near us, it’s about really knowing them, and really appreciating who they are, because God made them, and they are valuable.
Ya see, times have changed. When I grew up in the 1980s, we’d all make fun of kids that “rode the short bus”…maybe not to their face, but imitating “Tards” was something I excelled at. I was hilarious. I was the disabled one, if we’re telling the truth here. I was spiritually retarded. God gave me a precious gift in my son to show me God’s true heart. To show me my true humanity. The disabled personify the weakness we avoid. Nathan helps me get over my human/secular and foolish ideas about what it means to belong and be successful in God’s worldview.
Here’s the other cool thing. God gave me Nathan to share with you, too!
I think, my generation still fears the disabled. I doubt many will dare admit it. (It’s not politically correct, and we can’t look like uncaring jerks, right?) To most of us, the disabled are still a stigmatized and strange group; and we don’t know what to do with them…we don’t know what to do around them…we aren’t sure what they need. It’s all quite uncomfortable. Gosh, we are so glad we are not them. And we’re afraid. Afraid of the unknown and the unfamiliar, and the “other”.
Here’s the surprising twist. Our (non disabled) kids don’t have the same mentality. They don’t. Over the last 10-20 years, those with disabilities haven’t been sent away to special schools. They have been included, or in far closer proximity to typically developing children. The secular, public schools have outdone, and surpassed the church in this area of grace. They have honored and accepted disabled kids more than the church.
Please. Read those 2 previous sentences again…Slowly. Okay, never mind. I’ll just state it again: They (secular institutions and those who are a part of them) have honored and accepted disabled kids more than the church has.
(Yes. You should feel convicted right now. Even crying wouldn’t be over-the-top.)
As a Parent:
As the mom of a disabled child, I find that typically developing children, with just the a little bit of prompting or advice, adjust very well to interacting with my son, as if he’s a real human being who desires friendship. They even enjoy him! (It’s not just charity. It’s reciprocal friendship. It’s the kind of relating where everyone wins.)
On the other hand, I find that it is the parents of these (non disabled) children who are fearful, and unwilling to engage with my son, beyond the superficial. They are fearful enough to not help their child build friendships, or regularly interact with a disabled peer, or near-peer. They don’t create an easy opportunity for their child to grow, learn and become more compassionate. They don’t make it priority. As a child’s primary guide, this is a gross failure.
Church: But this is different at church, right? It’s a place of acceptance, and hospitality, and belonging, right? God’s love is shown in tangible ways, right? WRONG. My son has more meaningful relationships and friendships, and more grace shown to him with non Christians, in secular (even godless) environments, and with neighborhood children. (See, the government schools have been telling these kids that atypical kids were worth interacting with.)
KIDS @ PLAY
Once upon a time, I bemoaned to a woman at church the fact that Nathan had no friends at church, no meaningful interactions with any church children, no invitations extended to him to play with them, go to their birthday parties, or even watch a movie together (even after we had make a lot of efforts to create those situations and occasions). Her reply, “Well, I can’t force my kids to play with certain kids, and to like certain friends.”
I listened to her statement, and I didn’t really know what to say. This mom was prominent in the church. I didn’t challenge it. Upon reflection, I should have said, “LIKE HELL YOU CAN’T!”
As parents, we do it all the time. We curb or we encourage friendships for our kids regularly. Do we let our kids hang out with teenagers on the corner who are smoking? Uh, no. Does a naughty and petulant child get to sleep over? No. What about the children who bite, hit, or cuss? Do they get to make cookies in our kitchen with us? Nope. We influence our kids all the time. The fact is fear stops our hospitality. We stick with our comfort level, and pick our favorites.
I’m here to tell you that God has given us these different sounding and acting people as gifts, to teach us so much, but we don’t choose to interact, learn and be gracious.
“But I can’t find a disabled kid… What am I supposed to do?”
Well, try harder. Open your eyes. Ask around. Do you want the truth? The facts? Here they are: Do you live near 5 other homes? If you walk down your street, and pass 5 homes, 1 of those homes will be effected by disability. 1/5 of families are effected by disability everyday.
Do you know more than 6 children? If you know 6 children, 1 of them is likely to have a form of autism, or developmental issue.
Sometimes, I hear this: “Is it my job? How can I be responsible for knowing other people’s needs. I’m just not in their shoes.”
Yes. It’s your job. A frequent reason (or cop out) is saying that the parents of disabled children should just say what they need, and make the efforts to get their kids included. BULL CRAP!
Just thinking up a list of wants and needs would sound exhausting to a parent of a disabled child. Some days, they are just trying to make it through the day without losing their minds. Over 85% percent of marriages don’t survive when a child has a disability. It’s tougher than you think it is.
Listen. These parents have enough to deal with. Wake up! They have enough to do than to also make sure typical children are accepting and relating to their disabled kid/s. Mostly, they are tired. It doesn’t feel worth the effort. Failure seems sure. They are surrounded by frequent disappointments, the broken dream of not having a normal kid, and lots of scheduling issues and therapeutic measures in school, community, and other locations that help their kid or their family. They don’t have enough energy to get people on board with that type of stuff on top of everything else. (Ask them what a typical week is like, go ahead.)
YOUTH GROUP
My son went from being very excited to be old enough to be included in the middle school Sunday School section (See, in 5th grade…you get to sit on cozy couches!!) to now, about a year later, in 6th grade, detesting Sunday School, feeling like an outcast (even more than he had before), and now he doesn’t even believe in God. He says, “God is an unbelievable story.” It must seem like a fairy tell because he doesn’t see the love of God displayed toward him.
Based on the way many Christians behave toward him, he has an excellent point.
Like plenty of other children with autism or developmental disabilities (BTW…”developmental disabilities ” is nicest term for “retards” or the “mentally retarded”), Nathan doesn’t get abstract ideas like, “Is Jesus in your heart?” (He hears, “Is a bearded man in your chest cavity?” Utter nonsense!)
Nathan can’t see or touch Jesus; we have to be Jesus for him. He has to experience love-in-action, benefit from it, and be allowed to return this love as an equal. I don’t know if it’s too late for my church to be hospitable in the way that he’ll to want to be a part of it. I will keep that hope. I’m writing this now to start a change in how we respond and interact, so other kids with disabilities can feel like they belong, and are loved and accepted.
TIPS to get you started (for kids and adults) • Interaction doesn’t have to be hours of incredibly awesome friendship per day or week. A blood brother bond is not necessary. But, the interaction should be authentic, not out of duty or pity. Something simple like making something for them, sharing something, or just chatting pleasantly with them is plenty for starters.
• Asking about their interests (direct questions are best, maybe even just asking “yes or no” questions, at first), and then actually listening to them (even when you may not always understand them or know what to say) is helpful. They WILL understand when you care about them. Just take a bit of time to be gracious. It’ll do you good.
• Inviting them over for a snack, to watch a movie, take a walk, ride bikes, play with your pet, or play videos games may be enjoyable for them, and of course invite the family if possible. Ask if you can visit them. Create times that are specially for them, even if they are brief periods. 30-45 minutes is fine. (But realize they will love you for it, and want to do it again soon. My son never seems to stop talking about the boy we invited over to play, about 2 months ago.)
• Offer them yourself. Nothing fancy. Invest in them for real, emotionally, and with some of your time and efforts. When you offer authentic friendship it looks different than just a saying or doing the “right thing”. You take a risk.)
• Help them make a craft, picture, or a simple snack, play a game, look at a book, build with legos, and take the time to talk to them, or just be close by and attentive, etc. and show them you like them.
• Offer the parents of disabled kids respite time. Give them an hour or two break, and get the help, information, and extra helpers you may need to care for the child. (Only 10% of churches do this. Change this statistic.)
• Be inviting. What’s the worst that could happen if you invite a family over to your house? Maybe the child will do something unpredictable, and you won’t know what to do? Maybe you will feel uncomfortable? Get Over it.
MOVING FORWARD:
Where and how have you seen the disabled as full-fledged participants in your community or ministry? (How was it done rightly?)
AND–
How can I help you? If you want to show kindness, or God’s love to a family of a disabled person, or to a disabled person, What are your questions or concerns?
What about including or interacting with the disabled would you like to know?
What are your fears? Share them.
Let’s get this ball rolling. No question is off limits. Your comments, or experiences can be shared as well.
Thanks for reading. Thanks for changing for the better. -Lisa
Today is my 5th day with Poison Ivy. I wish getting a rash from the stuff made me look like Uma Thurman in the Batman Series. But no. It’s on my right hand, my neck, and my face. (I’ll spare you a picture…but if you’re weird and very curious you can find one I posted on Facebook… cause I’m weird. It was really more of a cry for help.)
My husband was impervious to the wiles of the wicked weed throughout his whole life. He was a sort of “Leaves of three, won’t hurt me,” kind of person. He was quite immune, and had an immense confidence in his resistance.
Little did he realize that one can develop a sensitivity at any time in life; sometimes suddenly–out of nowhere. You probably know where this is going, right?
Yep. Two years ago he yanked out a very pesky vine in our yard, and developed bumps under his watchband. “Bug bites,” he said. Very nasty and itchy bite causing bugs, with the kind of kind of moxie to work around and under a tight plastic strap, and skip all the easy biting areas. Hands? Ankles? Neck? That’s for sissy bugs! These bugs were The Seal Team 6 of the insect world.
After a few days, and the “bug bites” spreading (strangely enough), he complained how powerfully allergic he turned out to be to these vicious insect creatures. I took one look, and said, “That looks just like poison ivy.”
He said, “It can’t be poison ivy. I don’t get poison ivy.” Still, he agreed to have the doctor take a look, and was treated with a steroid for guess what? Now, he lives a life of fear for that side of our yard. Recollecting the agony has made him a different man.
HERE is a link to properly identify these common rash inducers.
People can be like poison ivy. Sure everything is innocuous at first. Maybe, we think, “Great, they’re raspberries!” Raspberries have leaves-of-three. And raspberries are delicious! Mmm. We interact with them, and after some searching, we don’t seem to find the fruit we thought we would. Nevertheless, no ill comes of it. It’s more of a enigma than anything. Hardy plants too. Look at them take off!
Then one day, it strikes us, these leaves-of-three people actually cause irritation, and a distracting burning itch…that spreads. You may try to make it work. You may try to just “semi-interact” with them, but a rash is always the result. Usually, it’s the kind of rash that gets a bit worse with each encounter.
Finally, you realize, “Leaves-of-three, let them be.” They are, in fact, poisonous to you and many others…even though they may seem like wonderful raspberries at first. Where they are comes annoyance, pain, or vexation. They are clever look-alikes. Nothing can make them raspberries, and you have to stop acting as if there is a way that a wholesale change into “something else” is possible. You realize you can cancel their debt of inflicting you, but you don’t want to be touched by them, or get too close anymore. It’s just not worth it.
Have you ever had to avoid a “poison ivy person”?
What are some cures or remedies you’ve heard of for helping with poison ivy? (The plant kind, or the people kind.)
And I’m really curious, What kind of prayer do you think might help with regards to poison ivy people?
This Sunday is my final lesson in the Route 66 Series (Adventures in Spiritual Formation). I will be reviewing the last 11 weeks (briefly), and then capping it off with an examination of the passage of what has come to be called, The Lord’s Prayer. And we will pray it communally as well. It’s a Christian unity thing.
Do you have any questions or concerns about the Lord’s Prayer?
Here’s a tiny excerpt from a seminary research paper I did of the theology, literary structure, and message of The Lord’s Prayer.
…The Lord’s Prayer comes as the centerpiece in Jesus’ Sermon on the Mount (Matthew 5-7:29) in which Jesus lays out what is vital for citizens in the Kingdom of God. Early in the Christian movement, the practice of saying the Lord’s Prayer before Communion (weekly) and [typically] praying it three times per day is documented. It formed a “token of their identity as Christians,” and was also called, the “prayer of believers”.1
The elements of adoration in The Lord’s Prayer propel us to appreciate God’s immanence and transcendence: a theological fundamental. God is hallowed, his kingdom heavenly, his earthly kingdom is both current and imminent. His kingdom will be forevermore.
The worship and adoration of God is crucial in prayer, and in this Prayer, not just because God is most worthy of it, but because we are spiritually formed by our saying, believing, and embracing those truths. We commune with God, and know him more fully as this reality is further congealed in our minds each time this is lived out.
Theologian Kevin Vanhoover contends that in praying the Lord’s Prayer we together experience our Father, our common sonship, and common our inheritance with Jesus. It is precisely the communal aspect of adoring that helps us to be ordered rightly. Furthermore, Vanhoozer states that when praying in this manner with Jesus, we participate in the family of God, and acknowledge God as Lord, while acknowledging oneself as contingent in the filial relationship made possible by the Son of God and the Spirit of adoption.2
1 Jeremias Joachim, The Prayers of Jesus. Studies in Biblical Theology, Second Series 6 (Naperville, IL: Alec R. Allenson, Inc., 1967), 63, 78.
2 Kevin J. Vanhoozer The Drama of Doctrine: A Canonical Linguistic Approach to Christian Theology (Louisville: Westminster John Knox Press, 2005), 225.
Literary Structure of the Sermon on the Mount (proposal) Literary structure/pattern and use of the Lord's Prayer Matt. 6:9-15. (proposal)
