Episode 20 – Puncturing the Illusions of our own Ableism and Flawed Ideas of Normal (with Tom Reynolds) part 1

Tom Reynolds
Tom Reynolds, PhD

 

Shownotes: PART I
A conversation (in 2 parts) with

the author of Vulnerable Communion: A Theology of Disability and Hospitality, by practical theologian Tom Reynolds

 

Bio:
Tom joined the Emmanuel College (part of the University of Toronto) faculty in 2007. He is committed to an interdisciplinary, practical, and relational vision of theology, his teaching and research address a range of topics related to constructive theology (particularly the doctrine of God and theological anthropology), theological method, intercultural and interfaith engagements, contextual theologies and globalization, philosophical theology, disability studies, and the thought and influence of Friedrich Schleiermacher.

His recent Articles

Email: tom.reynolds@utoronto.ca

MIN 4:00

Incorporating the theology of disability into his work training pastors at Emmanuel Seminary, because theology is personal, and not disconnected from the real world concerns of the church and people living their lives.

4:30

About his son Chris sparking his interest and work in the theology of disability.

5:30 Learning that disability isn’t a problem to figure out, but rather it’s about a person who I love and live with, and care with and for, which radically reoriented my perspective on theology.

5:50

Disability and God’s Providence

(Questioning does God “cause” disability as a curse or opportunity for healing…or a kind of moral lesson…)

6:30

His son exploded the theological categories (and assumptions) pertain to Providence…making everything confusing and needing to be re-thought.

7:00

What is abnormal? What is “faulty” humanity?

Amos Yong, Hans Reinders, John Swinton writing on the topic too.



8:15

Tom details the new book on the Theology of Care which builds on the first book.

8:40

Some churches stress Cure over Care in terms of disability.

8:50

(Lisa) My visit to a church where the leadership was interested in healing my son from his non normative experience of the world.

10:00

The range of responses churches have when encountering people with disabilities.

The  church’s “urge to cure” is better than outright exclusion, which plenty of families have encountered.

11:00

It comes from the the idea of remaking and fixing someone in a way that is more comfortable for non disable people and normalcy (what they consider normal). Not helpful or Christian.

12:00

About the church that didn’t want his son as a disruption and a church that did receive them.

13:00

“How can we help you?” was water for his parched soul. How the church accepted and welcomed the uniqueness of his son.

14:15

Hospitality vs. a narrow view of what is preferred.

15:00

The messiness of various kinds of people, in general, means we have to expand our view of grace.

15:30

Who gets to be a full-fledge member of the church community?

and the “mascot syndrome” for those with disabilities.

16:30 – 17:50

Levels and types of responses:

• Tolerate disabled, but they do not get to be a true part of the church.

• “Inclusion” sometimes means means the the “outsiders” get invites to the inside group based on the good graces of the in group, but are still treated as problems to be solved, or people that are to receive the gestures of charity from others (people for whom things are “done for (them”)”. Doing for instead of “being with”.

18:00

What is access? In is not just accommodations (i.e. ramps and special bathrooms) and alterations but ongoing…

Faith communities may be not expecting and not ready to receive those with disabilities.

18:30

It’s not an issue about outsiders, because disability extend to a broad range of issues, both visible and not visible, including mental health challenges that are already there.

18:50

Thinking of the word “BELONGING”

as in “to be longed for when you aren’t there in the fullest sense.”

John Swinton and belonging

19:40

Jean Vanier “In giving and receiving do we really thrive as people”

20:30

Unconscious bias that includes “fear of the stranger” and “fear of the stranger within”.

21:00

We fear weakness and vulnerability.

21:30

Before “mainstream”…the stigma of “retard”…and fearing and disposing weakness.

22:20

Nathan means gift. (Lisa) I learned that I had to recognize weaknesses (shortcomings) in myself the I saw reflected in my son…and communities can do the same type of thing unconsciously.

23:00

“The encounter with disability punctures the illusions of what we think of as our own strengths.”

23:50

The journey with a child with disabilities is isolating.

25:30

Societal epidemic that fears being vulnerable or perceived as weak or unable to perform in ways that are considered valuable by society.

26:00

We have to see what are myths about autonomy, independence, and productivity where are assume we are self-reliant and these qualities are prized so highly. “Able-ism” (The idea that being able in body and mind is normal and most vital which serves as the lens by which we see and judge the world and others outside those parameters as faulty.)

27:00

Tom’s latest work called “A spirituality of attentiveness”. Christianity: St Paul’s strength in weakness serves as a prophetic witness against a society that prizes the strong as the main thing of value. 1 Corinthinians pretense of strength undercuts our ideas of grace)

29:20

We are all only temporarily-abled. (Lisa).

31:00

On hearing “You must be so blessed to have a disabled person as a teacher.” Is this sometimes a reframing of the situation that spins the situation to be more palatable? A glossing with spiritual truths and making it about spiritual growth.

31:20

Instead, Chris’s life seeks its own flourishes, and he may at times function as a teacher.

33:00

Thoughts on intellectual ability (or inability) and belief in terms of Salvation.

God’s works God’s own path in different ways and in different capacities with people. This undercuts my arrogance (as a theologian), so I don’t think I can so easily map it out definitively and universal for all people in all places.

34:00

His son’s atheism (who is the God he doesn’t believe in)…and how that challenges our presuppositions about God.

34:50

“It is in the kind of relationships of mutual belonging that the full image of God is borne out.”

35:30

(Lisa) To my son I said, “when you see someone who is loving you, you are seeing God.”

(Lisa) On how I changed from thinking “right belief” as the way to understand God was central. Our intellectualizing what God has done is not salvific.

38:00

Martin Luther’s theology of the Cross:

The pretense that we know exactly where God is and how God works. Where God is most hidden is where God is most vividly revealed in saving ways.

38:30

“Who I am to declare that God’s grace only works in some ways? and the God’s capacity and God’s own mystery is limited to what I would deem and my community would deem adequate.”

39:30

What the practical theology of disability tells us about Grace with God and relationships with others.

40:00

“The longer I live and work as a theologian the more I realize the limitations of theology and the true infinite mysteries of God.”

Jesus was disruptive to religious pretense and suppositions. “You say this..but I say this…”

Theodicy – The question of why does God allow suffering and how should we think about suffering.

How Tom, as a theologian, answers the question,
“Why would a sovereign God allow a person to be born disable and encounter such suffering?” (This is great!)

The best is yet to come! Come back for part II next week.

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C.S. Lewis on longing and friendship

A few tidbits today from a greater mind than mine by a thousand or more:

C.S. Lewis.

jacklewis

Jack, as his friends called him, lived and wrote with an authenticity that made courageously interacting with the most painful and potent stuff of life an ordinary occurrence.

He loved deeply, he thought deeply, he wrote deeply, he suffered deeply. All these things, love, joy, friendship, sacrifice, loss, and longing were the topics of his work.

A heavyweight intellectual with the rare kind of genius to write concisely and accessibly to anyone, he never shied away from the messy parts of life–no matter who the audience. He might be most famous for his children’s fiction, but his poetry, literary criticism, apologetics, and other works reveal him as a polymath and literary giant. Thanks to the recent Hollywood versions of Narnia movies (which ardent C.S. Lewis fans find grossly wanting) ave created a renewed interest in Lewis making him more widely read now than he was in his own lifetime.

What made the man?

Tragedies cultivated a pensive and sensitive aspect of Leiws that complimented an agile, imaginative, and sharp mind.

Perhaps the deepest wound happened at age 9 when he lost his mother in death. His father was emotionally distant and sent him off to a series of boarding schools–which he deplored. The isolation and grief seemed to create a “heart-wound” from which he suffered his whole life; and from which he found solace in the hope of heaven and in the embrace of friendship.

Author Anthony Burgess wrote that “Lewis is the ideal persuader for the half-convinced, for the good man who would like to be a Christian but finds his intellect getting in the way.” (*source)

But, not at first.

First, the pain made him a committed and intellectual atheist at age 14. Despite his choice, Lewis still wrestled with what most creators and artists do, spiritually, as his journal from that time reveals:

“If I find in myself a desire which no experience in this world can satisfy, the most probable explanation is that I was made for another world.”

Later, Jack would reconcile these longings more throughly with theism. (An acceptance of God as Creator.)

Subsequently, he found Jesus Christ the fitting Savior and Redeemer of the story–which is life and human experience. The Savior myths of ancient times and other cultures he said evidenced that the story of God and Jesus was a “true myth” reflected in meta-truth and narrative intwined into the cultural fabric and story of (nearly) every civilization.

He continued to explore this idea of desire and longing–from which any one with an artistic temprament can take confort:

“In speaking of this desire for our own far off country, which we find in ourselves even now, I feel a certain shyness. I am almost committing an indecency.

 

 

I am trying to rip open the inconsolable secret in each one of you—the secret which hurts so much that you take your revenge on it by calling it names like Nostalgia and Romanticism and Adolescence; the secret also which pierces with such sweetness that when, in very intimate conversation, the mention of it becomes imminent, we grow awkward and affect to laugh at ourselves; the secret we cannot hide and cannot tell, though we desire to do both.

 

 

We cannot tell it because it is a desire for something that has never actually appeared in our experience. We cannot hide it because our experience is constantly suggesting it, and we betray ourselves like lovers at the mention of a name. Our commonest expedient is to call it beauty and behave as if that had settled the matter.

 

Wordsworth’s expedient was to identify it with certain moments in his own past. But all this is a cheat. If Wordsworth had gone back to those moments in the past, he would not have found the thing itself, but only the reminder of it; what he remembered would turn out to be itself a remembering.

 

The books or the music in which we thought the beauty was located will betray us if we trust to them; it was not in them, it only came through them, and what came through them was longing.

 

 

These things—the beauty, the memory of our own past—are good images of what we really desire; but if they are mistaken for the thing itself they turn into dumb idols, breaking the hearts of their worshipers.

 

For they are not the thing itself; they are only the scent of a flower we have not found, the echo of a tune we have not heard, news from a country we have never yet visited.”

 

How beautifully he captures longing!

For Lewis, camaraderie, fellowship, friendship, and love brought light and healing to his heart and his world. Through them he remained grounded and prolific.

Lewis on friendship:

In a circle of true Friends each man is simply what he is: stands for nothing but himself. No one cares twopence about anyone else’s family, profession, class, income, race, or previous history.

 

Of course you will get to know about most of these in the end. But casually. They will come out bit by bit, to furnish an illustration or an analogy, to serve as pegs for an anecdote; never for their own sake. That is the kingliness of Friendship. We meet like sovereign princes of independent states, abroad, on neutral ground, freed from our contexts.

 

This love (essentially) ignores not only our physical bodies but that whole embodiment which consists of our family, job, past and connections. At home, besides being Peter or Jane, we also bear a general character; husband or wife, brother or sister, chief, colleague, or subordinate. Not among our Friends. It is an affair of disentangled, or stripped, minds. Eros will have naked bodies; Friendship naked personalities.

 

Hence (if you will not misunderstand me) the exquisite arbitrariness and irresponsibility of this love. I have no duty to be anyone’s Friend and no man in the world has a duty to be mine. No claims, no shadow of necessity. Friendship is unnecessary, like philosophy, like art, like the universe itself… It has no survival value; rather it is one of those things which gave value to survival.

the sabbatical interruption ?

henri_nouwenLife is ‘a little while’, a short moment of waiting. It is to wait full of expectation. The knowledge that God will indeed fulfill the promise to renew everything, and will offer us a new heaven and a new earth, makes the waiting exciting. We can already see the beginning of the fulfillment. Nature speaks of it every spring; people speak of it whenever they smile; the sun, the moon, and the stars speak of it when they offer us light and beauty; and all of history speaks of it when amidst all devastation and chaos, men and women arise who reveal the hope that lives within them. What is my main task during my ‘little while’? I want to point to the sings of the Kingdom to come, to speak about the first rays of the day of God. I do not want to complain about this passing world but to focus on the eternal that lights up in the midst of the temporal. I yearn to create space where it can be seen and celebrated. ~ Henri Nouwen, Sabbatical Journey

by way of an update…

I look around and I realize that I have all the fixings to get 4-5 more posts done on my series about humor. But, something is amiss. I am humorless indeed. It’s an irony not wasted on me and its own sort of humor.

I suppose when I was trying to understand humor in the first place it was to save myself from this point. But I got here anyway.

So now, strangely, I feel like I’m on a sabbatical.

I’m placed in it but didn’t choose it. The will to write feels gone, even though seeds are in my hand. 

Today, I spent the day at the Jesuit Center and found a book on Henri Nouwen in the library and it piqued my interest in him once again. 

I don’t want to have this tortured part of me that gets befuddled most Autumns and Winters but there you have it, anyhow. 

Until I get my gumption back, I’ll post the occasional pieces and bits from the scratching in the dust that I’m doing now in this arid place of the soul.

Protected: Stepping into the quiet: before Discernment (follow up post; part II)

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