Episode 20 – Puncturing the Illusions of our own Ableism and Flawed Ideas of Normal (with Tom Reynolds) part 1

Tom Reynolds
Tom Reynolds, PhD

 

Shownotes: PART I
A conversation (in 2 parts) with

the author of Vulnerable Communion: A Theology of Disability and Hospitality, by practical theologian Tom Reynolds

 

Bio:
Tom joined the Emmanuel College (part of the University of Toronto) faculty in 2007. He is committed to an interdisciplinary, practical, and relational vision of theology, his teaching and research address a range of topics related to constructive theology (particularly the doctrine of God and theological anthropology), theological method, intercultural and interfaith engagements, contextual theologies and globalization, philosophical theology, disability studies, and the thought and influence of Friedrich Schleiermacher.

His recent Articles

Email: tom.reynolds@utoronto.ca

MIN 4:00

Incorporating the theology of disability into his work training pastors at Emmanuel Seminary, because theology is personal, and not disconnected from the real world concerns of the church and people living their lives.

4:30

About his son Chris sparking his interest and work in the theology of disability.

5:30 Learning that disability isn’t a problem to figure out, but rather it’s about a person who I love and live with, and care with and for, which radically reoriented my perspective on theology.

5:50

Disability and God’s Providence

(Questioning does God “cause” disability as a curse or opportunity for healing…or a kind of moral lesson…)

6:30

His son exploded the theological categories (and assumptions) pertain to Providence…making everything confusing and needing to be re-thought.

7:00

What is abnormal? What is “faulty” humanity?

Amos Yong, Hans Reinders, John Swinton writing on the topic too.



8:15

Tom details the new book on the Theology of Care which builds on the first book.

8:40

Some churches stress Cure over Care in terms of disability.

8:50

(Lisa) My visit to a church where the leadership was interested in healing my son from his non normative experience of the world.

10:00

The range of responses churches have when encountering people with disabilities.

The  church’s “urge to cure” is better than outright exclusion, which plenty of families have encountered.

11:00

It comes from the the idea of remaking and fixing someone in a way that is more comfortable for non disable people and normalcy (what they consider normal). Not helpful or Christian.

12:00

About the church that didn’t want his son as a disruption and a church that did receive them.

13:00

“How can we help you?” was water for his parched soul. How the church accepted and welcomed the uniqueness of his son.

14:15

Hospitality vs. a narrow view of what is preferred.

15:00

The messiness of various kinds of people, in general, means we have to expand our view of grace.

15:30

Who gets to be a full-fledge member of the church community?

and the “mascot syndrome” for those with disabilities.

16:30 – 17:50

Levels and types of responses:

• Tolerate disabled, but they do not get to be a true part of the church.

• “Inclusion” sometimes means means the the “outsiders” get invites to the inside group based on the good graces of the in group, but are still treated as problems to be solved, or people that are to receive the gestures of charity from others (people for whom things are “done for (them”)”. Doing for instead of “being with”.

18:00

What is access? In is not just accommodations (i.e. ramps and special bathrooms) and alterations but ongoing…

Faith communities may be not expecting and not ready to receive those with disabilities.

18:30

It’s not an issue about outsiders, because disability extend to a broad range of issues, both visible and not visible, including mental health challenges that are already there.

18:50

Thinking of the word “BELONGING”

as in “to be longed for when you aren’t there in the fullest sense.”

John Swinton and belonging

19:40

Jean Vanier “In giving and receiving do we really thrive as people”

20:30

Unconscious bias that includes “fear of the stranger” and “fear of the stranger within”.

21:00

We fear weakness and vulnerability.

21:30

Before “mainstream”…the stigma of “retard”…and fearing and disposing weakness.

22:20

Nathan means gift. (Lisa) I learned that I had to recognize weaknesses (shortcomings) in myself the I saw reflected in my son…and communities can do the same type of thing unconsciously.

23:00

“The encounter with disability punctures the illusions of what we think of as our own strengths.”

23:50

The journey with a child with disabilities is isolating.

25:30

Societal epidemic that fears being vulnerable or perceived as weak or unable to perform in ways that are considered valuable by society.

26:00

We have to see what are myths about autonomy, independence, and productivity where are assume we are self-reliant and these qualities are prized so highly. “Able-ism” (The idea that being able in body and mind is normal and most vital which serves as the lens by which we see and judge the world and others outside those parameters as faulty.)

27:00

Tom’s latest work called “A spirituality of attentiveness”. Christianity: St Paul’s strength in weakness serves as a prophetic witness against a society that prizes the strong as the main thing of value. 1 Corinthinians pretense of strength undercuts our ideas of grace)

29:20

We are all only temporarily-abled. (Lisa).

31:00

On hearing “You must be so blessed to have a disabled person as a teacher.” Is this sometimes a reframing of the situation that spins the situation to be more palatable? A glossing with spiritual truths and making it about spiritual growth.

31:20

Instead, Chris’s life seeks its own flourishes, and he may at times function as a teacher.

33:00

Thoughts on intellectual ability (or inability) and belief in terms of Salvation.

God’s works God’s own path in different ways and in different capacities with people. This undercuts my arrogance (as a theologian), so I don’t think I can so easily map it out definitively and universal for all people in all places.

34:00

His son’s atheism (who is the God he doesn’t believe in)…and how that challenges our presuppositions about God.

34:50

“It is in the kind of relationships of mutual belonging that the full image of God is borne out.”

35:30

(Lisa) To my son I said, “when you see someone who is loving you, you are seeing God.”

(Lisa) On how I changed from thinking “right belief” as the way to understand God was central. Our intellectualizing what God has done is not salvific.

38:00

Martin Luther’s theology of the Cross:

The pretense that we know exactly where God is and how God works. Where God is most hidden is where God is most vividly revealed in saving ways.

38:30

“Who I am to declare that God’s grace only works in some ways? and the God’s capacity and God’s own mystery is limited to what I would deem and my community would deem adequate.”

39:30

What the practical theology of disability tells us about Grace with God and relationships with others.

40:00

“The longer I live and work as a theologian the more I realize the limitations of theology and the true infinite mysteries of God.”

Jesus was disruptive to religious pretense and suppositions. “You say this..but I say this…”

Theodicy – The question of why does God allow suffering and how should we think about suffering.

How Tom, as a theologian, answers the question,
“Why would a sovereign God allow a person to be born disable and encounter such suffering?” (This is great!)

The best is yet to come! Come back for part II next week.

Will you help me meet my goal of raising $100.00 in August to keep Spark My Muse going? Use the Donate button on the left sidebar. Thank you for being a big ball of love!

Episode 2 (Wet Dog Fur Wine and Brene Brown)

Show notes:

Episode 2 (Wet Dog Fur Wine and Brene Brown)

Make sure your wine never tastes like wet dog fur. huh?

 

Spark my muse is The podcast for curious creatives types, wine newbies, and those willing to put up with my occasional silliness. Thank you so much for sharing your time with me.

Today:

How wine can go to the dogs and how to best store wine in the wine segment.

Plus, a bit about a topic and a book that has made a huge difference in my life.

This episode of the podcast is brought to you by:

Dog in the Gap

Having a pet in your care, who helplessly depends on your for life and well being can teach you a lot of things. 10 essays both funny and insightful written by 2 authors and plenty of memorable photos.

Or get the bonus addition for $1 more that has an extra essay and non public video links, and other assorted goodies.
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Today’s wine segment!

Why might your wine taste like wet dog fur….and what to do about it?

Basic Stats:
A wine bottle has 25.33 oz. (750ml).
A serving (a glass) of wine is 5 oz . (Half way up the glass is full. Where the glass is widest (aroma reasons in the design)
1 bottle = five glasses.

If your wine smells stale or like wet dog fur…it is Corked!

(The cork is not working and too much air has mixed with the wine.)

Wine last 24 hours if the air is pumped out
Here’s the one I recommend we use it at work. It pays for itself after two uses.

Wine lasts only a few hours if it’s not pumped. It’s not harmful, but it won’t taste its best. Pushing the cork back in won’t help too much because air is trapped in there.

Another reason Wine is stored on its side to expand the cork. A bottle corked with a plastic cork won’t be helped by horizontal storage.

On the next PODCAST – I’ll talk about my favorite tool for opening wine and why, and the bottle opening tools you should (probably) avoid !

 

Now to spark your Muse

Brené Brown’s work made its mark on me before she did her famous 1st TED TALK which lead to you famous ins TED Talk on her research about shame and vulnerability at the University of Houston.

 

 

The topics in the book and some of the passages I’ll read to you have really gained new significance  because putting up a podcast is risky. I feel vulnerable and I feel like I might get rejected. Some people won’t like it and I can’t change that. I don’t want to fail. And I don’t want to look like an idiot. And looking like an idiot is extremely probable.

When we are about to step out into unknown territory or if we doing something that makes us more vulnerable the two main things we think are “who do you think you are?” and “You’rd going to look like a fool” and I might add one to that “You won’t do it right” (it ’s related to the 2nd one) Maybe you can think of others that come to you mind.

We seem okay to handle other people’s vulnerability but really reluctant to risk that ourselves.

Excerpts from Daring Greatly:

Pg 35 “I define vulnerability as uncertainty, risk and emotional exposure”

My note: We can’t risk feeling vulnerable if we are dealing with shame.

pg 68 “people who don’t experience shame lack the capacity for empathy and human connection”

My note: Social also social pain. We fear rejection and isolation.

pg 67 “shame derives its power from being unspeakable”

Language and story bring light to shame and destroy it

pg 71

Guilt is “I did something wrong”

Shame is “I am bad” (or “I am something wrong”)

• When new feel shame we lash out, get anxious, hide, or numb out, and really we need to do the opposite of those things to have victory.

• Instead of lashing out or hiding we need to reach out, to some one we can trust.

• Instead of overcompensating we have to cut ourselves a break. “I make mistakes. I’m moving on past this one.”

Pg 80 Brené says “If I own the story I get to write the ending.” I just heard a fascinating TED TALK from Monica Lewinsky and she sounds like she’s taking this advise. She said it was time to take back her story and control her own narrative.

Reaching out and being honest creates an environment of empathy, and that’s really why I’m sharing all this with you.

Don’t be afraid to create and do things that are your passion. And mess up while doing them. I’m messing up a lot, but I’m trying to not let those mistakes put me in a choke hold of shame and inaction.

I hope you will be inspired to do the same.

Thanks for listening today!

Or if you have read Daring Greatly, what was the most powerful thing you learned. I’d love to hear from you! Leave comments at sparkmymuse.com or the email contact@sparkmymuse.com

subscribe to the podcast….tell your friends what you and I have been up to. See you soon.

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The Familiar Enemies

RiskBelow are some of my “field notes” I collected from this extended and uncut interview with Brené Brown on Krista Tippet’s show “On Being”


 

[emotionally toxic / unhealthy] people suffer from similar traits:

• Perfectionism

• Self-righteousness

• Tying self-worth and personal value to productivity and success

• Wanting to perform and get validation

• Using exhaustion as a badge of honor

• The quest for certainty


 

Quote/snippets
• The enemy of creativity is comparison.

• Vulnerability is the core the heart and the center of meaningful human experience.

For woman the biggest fear/risk looks like this: “do it all and do it well and look perfect doing it”.
For man it looks like this: “do not appear to be weak”.

If people have never really struggled with adversity it shows up as hopelessness.

Hope is not an emotion; it’s a cognitive behavior process that is a function of struggle [and resiliency]. It doesn’t happen in the absence of pain or when we are spared pain.

Our defining moments (what makes us who we really are) happen not in joy but in adversity.

(Vulnerability is uncertainly, risk and emotional exposure ….and it’s courage. —my note: all things artists and innovators MUST have.)

When we don’t have space to be vulnerable and have fears we become dangerous.

If these sound like helpful, juicy nuggets to you, listen here:

Faith = a Basket of Eggs: In Tribute to David A. Dorsey

eggs

 

So, a dear man died one week ago. Dave, to his students (because he preferred this), and Dr David Dorsey, PhD officially. On Tuesday the chapel was packed for his funeral as hundreds resolutely braved sub zero wind chill to pay respects, support his family, share memories and express their sadness at the loss. For us who remain in this world and knew him the hole of his absence hurts. It actually feels painful.

 

dorsey

 

If I tried to tell you all the things that I loved about my former Old Testament Professor, or the countless benefits to me, or the simple and genuine ways he loved on me and others, I would be typing for days. Suffice it to say just about everyone on Tuesday was in tears and everyone felt the weight of the loss as we remembered his light in this world.

In the next few weeks I hope to share some of the insights I gleaned from this amazing scholar and human being.

For now, I’ll share with you something Dave taught us about faith. Granted, I won’t do it justice; and if you read this and heard differently from him, please add your own amend in the comments section.

So, here goes…
He said the faith of the patriarchs of Israel might not be the kind of faith we suppose it is. Hebrews 11 gives us a “Hall of Fame” of the faithful. We may think that these people trusted and relied on God. They did. But we get the pedigree of it all wrong. The practice of faith is much richer than we might suppose, especially at first glance reading the list of the faithful.

Instead, it’s something like this:

Faith is not about being hopeful about what lies beyond the bend in the future. It not really about a “blind” ascension to trust either. Those are good and important in their ways, but when we speak of the life of faith in terms of the Old Testament faithful, like Abraham leaving everything he knew for the wilderness for instance, we are really talking about a concept much like “putting all your eggs in one basket.”

That’s how Dave put it. The word picture stuck and it stuck good.

With the Life of Faith…
You are deeming God good, trustworthy, and loving and then you put it all on the line.

(So, it’s rarer than you think!)

You stop hedging your bets. You stop saving a little security for yourself. You stop holding something back that gives you a sense of control. You bet the whole thing. You leave nothing back. You. go. in. wholly.

Sometimes, I find eggs in my pockets, or around the house, or in places that I didn’t know they were, like a weird easter egg hunt. Not chicken eggs, of course, but the eggs of my worries. I may have thought I handed the basket over, and perhaps I really did, but life can make you lay a few eggs. Sometimes people throw them at you too.

 

 

Faith, Hope, Love. Those are what remain, yes?

Faith = a Basket of Eggs.

It’s a shocking level of vulnerability: the life of faith.

You can tell when you do it too. You get a mixture of feelings. Great relief that your job is over, your poor skills are not needed any longer, and someone more capable is now responsible and in charge. Whew! Then, you may get a twinge of terror at the power you gave up, but probably never really had anyway. You become all at once very hopeful and very dependent. It’s precarious.

There’s a rare beauty to it.

Sometimes we give up our baskets and sometimes they sort of get pried out of our hands.

Dave was gravely ill for over 3 decades. His was a life of faith. It had to be. And he handed over eggs.

It was a wrestle match, he would tell you. He didn’t always feel faithful. He made mistakes. His candor was humbling. But, through his honesty he became faithful all the more.

There’s something about growing to trust God for each breath, and believing that God revealed himself as a thoroughly good and gracious and generous Creator and Sustainer in the passages of the Old Testament that transformed this brilliant man into a true saint. Not sappy, but real. All at once very strong and stable and yet achingly weak.

Dave was not self-righteous but gracious. Not arrogant in any discernible manner, but loving and open to others. Concerned with others and their lives and largely uncomplaining. Free with his humor and goodwill.

Hear this: You don’t get the privilege to meet people like this very often. You don’t get to be a person like this often. It’s takes an amazing about of formation, re-formation, and transformation. It doesn’t happen by accident or by genetics.

A life of faith means that you hold nothing back. See the difference?

It’s not using power to feel better. It’s giving it over to be fully won over.

 

In a life of faith you love whole-heartedly. Not because it’s safe. It never is. But, because it is good. A life of faith means that you have a sharp, ongoing sense of your own weaknesses and dependence, and that goes overflowing into compassion for yourself and others.

A few days after Dave’s death I was praying in the car out loud as I do sometimes. (I take more comfort in doing this now. People talk on the phone hands-free all the time in their cars and look like they are talking to nobody. Now, I just look like I’m having an important conversation. In fact, I am, especially when I shut up.)

So, I was in the car and I was warring as I too often do with things in the distance. Shadows, possibilities, next steps. I was planning, wondering, and worrying–like I was holding a bunch of eggs and walking on a lake of ice.

And then I said, “No, this just won’t work. I see I’m holding too tightly. I think I have to go all in. I have to have faith. I have to put all my eggs in one basket. Your basket.”

And a song sung by Ella Fitzgerald came to mind. I’ve embedded the audio so you can hear it after you finish.

Then I simply burst into tears, because that’s what a godly and good legacy looks like. Literally, one leaves words to live by. Dave’s words of life and hope and faith were ringing true in my mind in everyday life, even after he’s gone. And I thought, “That’s an amazing man and I was given an amazing gift to know him.” I kept having to wipe away tears for awhile.

 

 

Spirit, you know, is “breath of life”. (The Hebrew and Greek words for breath carry this meaning.) God is Spirit. When you see goodness, when you see sacrificial love, when you see wrongs being made right, you see God. You see the Spirit of the unseen God. Those describers are just part of what and who is impossible to confine or describe fully.

God isn’t just Life Force, but God is that too. And I don’t think Dave lost his own spirit or the Spirit. I think God became greater. The Spirit got so great that it filled him, and his body of water and carbon gave out, finally. It birthed something new and better and unseen and lasting.

And this Spirit and the part of Dave that is Dave (his truest self–his soul) joined up in union with the Great Spirit, somewhere and everywhere, the One, True, Living God who defies reason, explanation, and the limits of us, and even of the universe.

But, Dave didn’t completely leave us. But, my does the sting smart, right now! From my experience I know it dulls in time; but the pain is, at first, ultimate.

Yet, the fragrance of his spirit remains. And it is sweet.

It’s around us when we remember him. The Spirit remains, and Dave’s flavor fused with that true Spirit carries on with us. We miss the more familiar everyday interaction with him so dearly, and always will, until the same happens to us and we are joined somehow together again.

To those who grieve him: his family and friends, I join you in your deep and powerful sorrow. I join you in your joy–that is bitter and sweet–that realizes the gift he was–having known him, been enriched by him, and been intimately connected to him. Your loss is not small.

May you feel the comfort, presence, shalom, and holy goodness of the Spirit of God.

Amen.

 

-Lisa

P.S.
Here is a brief local obituary posting of David A. Dorsey.

 

With these links you can enjoy two of his most well-known books:

 



(egg photo is a Creative Commons image.)