Episode 20 – Puncturing the Illusions of our own Ableism and Flawed Ideas of Normal (with Tom Reynolds) part 1

Tom Reynolds
Tom Reynolds, PhD

 

Shownotes: PART I
A conversation (in 2 parts) with

the author of Vulnerable Communion: A Theology of Disability and Hospitality, by practical theologian Tom Reynolds

 

Bio:
Tom joined the Emmanuel College (part of the University of Toronto) faculty in 2007. He is committed to an interdisciplinary, practical, and relational vision of theology, his teaching and research address a range of topics related to constructive theology (particularly the doctrine of God and theological anthropology), theological method, intercultural and interfaith engagements, contextual theologies and globalization, philosophical theology, disability studies, and the thought and influence of Friedrich Schleiermacher.

His recent Articles

Email: tom.reynolds@utoronto.ca

MIN 4:00

Incorporating the theology of disability into his work training pastors at Emmanuel Seminary, because theology is personal, and not disconnected from the real world concerns of the church and people living their lives.

4:30

About his son Chris sparking his interest and work in the theology of disability.

5:30 Learning that disability isn’t a problem to figure out, but rather it’s about a person who I love and live with, and care with and for, which radically reoriented my perspective on theology.

5:50

Disability and God’s Providence

(Questioning does God “cause” disability as a curse or opportunity for healing…or a kind of moral lesson…)

6:30

His son exploded the theological categories (and assumptions) pertain to Providence…making everything confusing and needing to be re-thought.

7:00

What is abnormal? What is “faulty” humanity?

Amos Yong, Hans Reinders, John Swinton writing on the topic too.



8:15

Tom details the new book on the Theology of Care which builds on the first book.

8:40

Some churches stress Cure over Care in terms of disability.

8:50

(Lisa) My visit to a church where the leadership was interested in healing my son from his non normative experience of the world.

10:00

The range of responses churches have when encountering people with disabilities.

The  church’s “urge to cure” is better than outright exclusion, which plenty of families have encountered.

11:00

It comes from the the idea of remaking and fixing someone in a way that is more comfortable for non disable people and normalcy (what they consider normal). Not helpful or Christian.

12:00

About the church that didn’t want his son as a disruption and a church that did receive them.

13:00

“How can we help you?” was water for his parched soul. How the church accepted and welcomed the uniqueness of his son.

14:15

Hospitality vs. a narrow view of what is preferred.

15:00

The messiness of various kinds of people, in general, means we have to expand our view of grace.

15:30

Who gets to be a full-fledge member of the church community?

and the “mascot syndrome” for those with disabilities.

16:30 – 17:50

Levels and types of responses:

• Tolerate disabled, but they do not get to be a true part of the church.

• “Inclusion” sometimes means means the the “outsiders” get invites to the inside group based on the good graces of the in group, but are still treated as problems to be solved, or people that are to receive the gestures of charity from others (people for whom things are “done for (them”)”. Doing for instead of “being with”.

18:00

What is access? In is not just accommodations (i.e. ramps and special bathrooms) and alterations but ongoing…

Faith communities may be not expecting and not ready to receive those with disabilities.

18:30

It’s not an issue about outsiders, because disability extend to a broad range of issues, both visible and not visible, including mental health challenges that are already there.

18:50

Thinking of the word “BELONGING”

as in “to be longed for when you aren’t there in the fullest sense.”

John Swinton and belonging

19:40

Jean Vanier “In giving and receiving do we really thrive as people”

20:30

Unconscious bias that includes “fear of the stranger” and “fear of the stranger within”.

21:00

We fear weakness and vulnerability.

21:30

Before “mainstream”…the stigma of “retard”…and fearing and disposing weakness.

22:20

Nathan means gift. (Lisa) I learned that I had to recognize weaknesses (shortcomings) in myself the I saw reflected in my son…and communities can do the same type of thing unconsciously.

23:00

“The encounter with disability punctures the illusions of what we think of as our own strengths.”

23:50

The journey with a child with disabilities is isolating.

25:30

Societal epidemic that fears being vulnerable or perceived as weak or unable to perform in ways that are considered valuable by society.

26:00

We have to see what are myths about autonomy, independence, and productivity where are assume we are self-reliant and these qualities are prized so highly. “Able-ism” (The idea that being able in body and mind is normal and most vital which serves as the lens by which we see and judge the world and others outside those parameters as faulty.)

27:00

Tom’s latest work called “A spirituality of attentiveness”. Christianity: St Paul’s strength in weakness serves as a prophetic witness against a society that prizes the strong as the main thing of value. 1 Corinthinians pretense of strength undercuts our ideas of grace)

29:20

We are all only temporarily-abled. (Lisa).

31:00

On hearing “You must be so blessed to have a disabled person as a teacher.” Is this sometimes a reframing of the situation that spins the situation to be more palatable? A glossing with spiritual truths and making it about spiritual growth.

31:20

Instead, Chris’s life seeks its own flourishes, and he may at times function as a teacher.

33:00

Thoughts on intellectual ability (or inability) and belief in terms of Salvation.

God’s works God’s own path in different ways and in different capacities with people. This undercuts my arrogance (as a theologian), so I don’t think I can so easily map it out definitively and universal for all people in all places.

34:00

His son’s atheism (who is the God he doesn’t believe in)…and how that challenges our presuppositions about God.

34:50

“It is in the kind of relationships of mutual belonging that the full image of God is borne out.”

35:30

(Lisa) To my son I said, “when you see someone who is loving you, you are seeing God.”

(Lisa) On how I changed from thinking “right belief” as the way to understand God was central. Our intellectualizing what God has done is not salvific.

38:00

Martin Luther’s theology of the Cross:

The pretense that we know exactly where God is and how God works. Where God is most hidden is where God is most vividly revealed in saving ways.

38:30

“Who I am to declare that God’s grace only works in some ways? and the God’s capacity and God’s own mystery is limited to what I would deem and my community would deem adequate.”

39:30

What the practical theology of disability tells us about Grace with God and relationships with others.

40:00

“The longer I live and work as a theologian the more I realize the limitations of theology and the true infinite mysteries of God.”

Jesus was disruptive to religious pretense and suppositions. “You say this..but I say this…”

Theodicy – The question of why does God allow suffering and how should we think about suffering.

How Tom, as a theologian, answers the question,
“Why would a sovereign God allow a person to be born disable and encounter such suffering?” (This is great!)

The best is yet to come! Come back for part II next week.

Will you help me meet my goal of raising $100.00 in August to keep Spark My Muse going? Use the Donate button on the left sidebar. Thank you for being a big ball of love!

Episode 15 Shane Tucker and the listening art of “soul friendship”

Today: A conversation with Shane Tucker!

Shane is a Soul Friend (Spiritual Director) with a focus on artists and creatives, be they “yuccies”, “slashies”, painters, musicians, or any one in need of deeper and more sustaining, soul-level communing.


 

How we find spark:
Together, we make the Spark My Muse podcast happen.
I prepare something and you digest it.

 I invite you to just listen, read the show notes and click on links, and give what you can.
That’s all. :)

 

• If it’s worth nothing…um what? Are you serious? This just got more awkward..Aw…snap! I sincerely apologize. Let me know what I can improve and please come back and listen again soon!

• If it’s worth one dollar, five dollars, twenty-five dollars, six hundred dollars, a billion-zillion dollars… you get the idea…

simply, tap into the river of gratitude in your heart and contribute what you can– HERE or use that Paypal button, over yonder.

 

(Of course, since money isn’t everything, you can say “thanks” and help with something that is not monetary, just let me know here. You make fruit pies, right?)

• Use the social share buttons, spread the word, leave a great a review at iTunes…these are all ways to help too.  Thanks in advance for your generosity!

Every little bit helps a lot.
Thank you, listeners for making the show heard in 96 countries and a,l 50 of the United States!

With Love,
~Lisa


SHOWNOTES with links and highlights.

Wine Segment:
MINUTE 1:30 On meade and Irish wine

Snapshot of the segment:

• Meade is fermented honey and herbs added.

• Irish wine is (usually) white wine, with some honey and herbs.
• It is still often used during the wine toast in Irish wedding ceremonies.

 

Sparking your muse!

Shane-@-Ross-2012-MA conversation with Shane Tucker:

His website

His Twitter

Shane is…
• An ordained Anglican Preist

• A trained Anam Cara (soul friend in the Irish Tradition).

• He lived with his wife and family in Ireland for 11 years!


Conversation (podcast) notes:

MINUTE 3:00

How Shane and his wife and family happened to live in Ireland for 11 years.

4:15
How God begins to grow dreams in us

Working at the Willow Creek Church

People have long said that still seems true. When foreigners come that end up being more Irish than the Irish themselves.

7:20

One of the most potent lessons learned from the Irish was the necessity to put people first. They take time to connect with each other and share life.

9:00 A sense of call to minister to artist and creatives.

9:40 On why he feels a passion to serve the creative community: “I believe the creative of today is the prophet of old”. It is a prophetic call.

10:10

“Creatives are called to paint a picture of the future that God is calling us all into. His Kingdom coming.”

10:50

“When a creative (person) using their gift…it taps into something deep inside of us and reverberates…and it feels like echoes of home.”

12:00

Jesus invites us to “walk with me and work with me.”

12:20

answering: What is Spiritual Direction (or soul friendship) actually?

13:00

A soul friend is “the best friend you’ve always wanted.”

and the Saint Bridgette quote…

13:50

A good picture is in the New Testament of the friends walking to Emmaus and then Jesus come in their midst. Unpacking life.

14:00

“The Soul Friend is someone who helps us see how God has been at work in our lives…so we can (as St. Ignatius says) “to recklessly abandon ourselves to his loving care.”

15:20

The problem with the phrase “Spiritual Director” on two counts so I use “soul friend”.

18:00

How he was trained in soul care and soul friendship

21:00

On becoming an Anglican Priest…

25:00

What he find to be the deepest needs of the creative community he works with?

Affirmation and Presence

30:00

Living in a Creative Age (moving from head to heart)

31:30

There’s an affective moving in society leading with Beauty first and then Truth that leads to freedom.

32:00

Alan Crieder

Behave Belong Believe (in which order should be in what era)

33:20

“What the heart loves, the will chooses, and the mind justifies.”

35:00

The error of focusing too much on trying to convince people just intellectually.

36:00

Ignatian Spirituality

Celtic Spirituality

Soul Friendship
by Rev Ray Simpson (Church of England)

The Celtic Way of Prayer
by Ester De Waal

Holy Companions

42:30

on the hospitality and generosity of Irish spirituality.

The story of an Inn with 7 doors for the 7 roads.


Thank you so much for listening to the show!


 

To get alerts of the topics and the new and interesting folks coming to the podcast in future episode click HERE.

Here’s a tasting of who’s coming in the next few months:

Mako Fujimura

Nicole Unice

Shane Claiborne

and, yes, more!

 

On Camping and “The Chatter of the Mind”

boating

For the last 10 years in a row, we’ve gone to Camp Swatara to…almost rough it as a family.

We just got back yesterday afternoon and began the de-camping process. 6 loads of laundry and putting things away for 3 hours. It’s more tiring than camping, and camping includes foraging for firewood to sustain your life.

For the first time, I didn’t take a single picture of our time away. (The photo above is from the camp website. It’s nondescript enough to resemble us.) It seems strange that I didn’t take any now that it’s done.

It’s an interruption to take photos sometimes, so honestly, I didn’t even think about it. My mind was chattering and I was more “in the moment”.

Later, off course, the photos come in handy to help you remember what happened. Right now, I think I remember something about killing 30 flies with the swatter and the surge of gratification that gave me–and something about S’mores.

 

My least favorite things about camping:

1. Too much humidity (Towels dry outside on the clothesline….never.)

2. Feeling covered in dirt and sweat 95% of the time

3. Feeling covered in sunscreen and bug spray over the layers of dirt and sweat

4. Bugs and all sort of biting and buzzing insects

5. Walking outdoors to use the indoor bathroom facilities

6. Thin mattresses that cause aches and pains

7. The hyper-vilgilengce about poison ivy and occasionally getting it.

(It all sounds like a dream-come-true, right?)

 

(some of) My most favorite things about camp

1. Having friends visit

2. The hospitality inherent in the camping community (sharing, chatting by the fire, friendly greetings as you walk around)

3. Family togetherness. Yes, it’s forced on you, but you can really start to enjoy it, usually.

4. The way things smell when the dew evaporates off the leaves in the morning.

5. How the day eases into the night and the darkness that comes to ease you into sleeping

6. Overcoming crisis together. Yes, it’s pretty awful at the time, but great memories and bonding come later.

7. Making fire and cooking with it, or using the firepit as a homing device. It’s hypnotic and primal and warm.

8. The refinement that happens when you realize what you truly need, compare to what you think you need. It turns out that you want things you don’t need.

What you really need: water, food, dry shelter and clothing, each other. What you think you need: a faster laptop.

 

In the end, you have kids that look forward very happily to the time away, and two parents (me and Tim, obviously) who are happy it’s part of our summertime, even though the whole process is challenging.

It’s actually the challenge that creates the satisfaction later, but you don’t know that unless you try it the whole way through.

If you aren’t psychologically ready to endure, you can get bitter or regretful (…um…so I’ve heard). Plus, it’s a dry camp, so there’s no wine to easy you into it.

 

The other thing is that intact families tend to camp together. I didn’t have this growing up and it’s a gift I give my children and myself now.

Yes, sometimes “split-up” families camp, too. But, mine didn’t.

Usually broken up families have a lot more scheduling issues and conflicts. Camping as an activity gets pushed to the side, unless you are very dedicated about it and keep it up.

 

And then there’s the Chatter of the Mind

And sometimes, though not this time, I get to hear less from the planning and inner monologue part of my “chattering mind”.

In general, this chatter may be telling you that you forgot ziplock bags at home or that, or that despite your efforts, you really aren’t worth much in the world, or that you should have cleaned out the vacuum filter more thoroughly, or that you made a mistake in explaining something, or that the people you were just talking to think poorly of you, or that you have to cook something that requires 14 steps… and how will be working out anyway, or the plans for the afternoon and where and how to apply sunscreen properly for it, or any number of things.

There isn’t much quiet in and about our minds, and not for very long. 

It’s called thinking. It can be incessant. It’s not just me, right?

If you finally reach that place in time and space where the chatter dies down, it’s almost deafening, actually. At first.

It tends to happen, not on family camping trips, but when I retreat away from home and I go alone. After 2-3 hours of intensional quietness–dialing down everything things improve. But that’s only when I’m being disciplined about getting away and pushing every nuisance thought back, or submitting it to paper, each time one surfaces. If not, it can take days, and too often never happens at all.

And after you tamp down or divert each thought pelting your brain you realize you’ve been breathing all wrong for much too long. You haven’t been able to separate the planning from the enjoying and looking around. You’ve forgotten the things you love or you have not noticed the things you should.

It doesn’t happen all at once that the chatter starts bullying you, but it happens.

(To come to my next retreat trip, click here.)

The chatter is an adversary that comes in pretending to be helpful and careful, as if it has your best interests in mind. But really, it’s just making you weary by using up too much valuable “mental RAM”, like (foolishly) running windows on top of a Mac Operating System.

How’s your mental RAM these days, anyway? Up to snuff?

Can you remember the last time you didn’t experience “the chatter of your mind” for some length of time?

(If you’re thinking about that now, or much of anything, then now is not one of those times.)

And if settling it all down sounds too close to death, then it’s been too long.

I’d love to hear your thoughts on it.

 

Something about a Labyrinth and Surprises

jclab

This time the weather was the coldest I’ve ever experienced in Wernersville. Until now, my times of retreat at the Spiritual Retreat Center were during Spring or Summer.

Stripped of leaves, color, and warm weather, the place seems monochromatic outdoors, but is still restful and precious to me. There are many prayer room options, a beautiful chapel, plus rooms for things like creating art, music, reading, or for meeting with others. Each place seems to wait for your arrival. Anyone can go there for the day without notice. I love that about it. That’s true hospitality. You are always received and welcome. You don’t need to be Catholic either. God is there in a special way and it’s a sacred place created solely for the purpose of divine communion and renewal. To me, that sounds just like Heaven.

Unless you get run over by a jet-powered lawn mower, but I’ll get to that in a minute.

The Center has recently added a prayer labyrinth (shown above). Many people aren’t familiar with labyrinths–their purpose or their gifts. They create the opportunity for reflection and spiritual awareness. Some (Evangelical) Christians bristle at the copious statues, candles, prayer mazes, and other unfamiliarities about a Catholic environment. I suppose I’m post-Evangelical: the richness of the Christian history and the solidifying sense of the sacred draws me toward the transcendent in a place like this. Every time in an unexpected way.

That’s what happens when you go there. You find God. You find God at the center. The center of you…in your core where he’s always been, because he’s everywhere-present and boundless in love. He’s been whispering things of love to you and smiling but you thought it was just bad pizza leftovers or something you made up to make yourself feel better.

Life is like a puzzle. A labyrinth is a puzzle. It’s a tool too. You can study a labyrinth before you walk the path through it, but while you are walking through studying it can make it far more confusing. Usually, you stop being stupid and cease trying to decipher the pattern precisely and just follow it like a child might do. This way, a labyrinth can be a lovely stilling and spiritual experience, not because of its own woo woo mystical powers (it doesn’t have that), but because it invites a traveller to concentrate and focus–to place her steps carefully. Most importantly, it forces one to slow down.

We don’t realize how fast our thoughts buzz until we get these sorts of opportunities to be careful. If you walk a labyrinth things mentally wind down and simplify to, “Stay on the path. Follow this narrow way. Pay attention.” Some enjoy walking very slowly and praying as their heart grows hushed.

Searching for the puzzle
I saw a photo of this newly constructed prayer walk inside the Center and I started to search for it outside. It was actually in plain sight but I hadn’t been looking for it, so I didn’t see it. (In case you haven’t figured it out by now, this true story doubles as an allegory.)

When I spotted it, a man driving a zero turn radius lawn mower was zipping and roaring around it, back and forth; expertly, but fast enough for me to wonder about his judgement. Crisp leaves shot into the air and the wind whipped them into little showers of bullets.

“That won’t work,” I said. “What am I suppose do? Have a peaceful prayer time as Zippy here shoots me with leaves and the mower engine drives me to distraction?” I crossed past the paved puzzle a small stretch to a gazebo with park benches set in a circle.

It was still noisy there, but the mower sounded duller. I would wait him out. I tried to settle my mind. Maybe I could do some warm-up praying. No. My thoughts swam. “Who’s Zippy now?” I thought.

Instead of waiting, I went on a short walk in the wood nearby over a little ridge. The path looked to have been crudely bulldozed recently and massive tree parts and 4 inch thick vines were crammed in piles. It was other-worldly–so many thickets covering whole sections like umbrellas, even though most of their foliage was missing. Surreal yellow leaves on the ground seemed day-glow bright. I felt like a zombie putting one foot in front of the other as I made my way around the wet earth and wild terrain. The humming mower served as a beacon to orient me. It was comforting and ironic.

Then a church bell snapped me back. It chimed 11, and I recalled how church bells were auditory calls to prayer and attention. It felt like a call to go home…to something. I immediately wanted to get my bag from the gazebo and look at the church more carefully in a peaceful and maybe prayerful environment. I managed a shortcut straight up a bank after a brief bout with prickly plants. I got my things and trekked toward the church. When I got there, guess who was on the grounds too? Zippy, or some other diligent lawn guardian, was tooling around the church grounds. The noise was worse now because it was bouncing off the stone structure and echoing off the parking lot asphalt.

I decided to double back and sit on a bench near a garden path that featured the Stations of the Cross. (If you’re wondering about the Stations of the Cross, visit again soon, because I’ll be detailing that in a future post.) I munched on some snacks, journaled a few things, prayed some (kinda-sorta), and enjoyed a few sunbeams that momentarily bested the clouds. It felt nice to be there, but, then I started to feel really cold. My nose had a ice cube quality and the sun had ditched me.

I headed toward the large main building. An ancient woman was being rolled toward the main entrance in a wheelchair. Rather than getting in their way, I decided to walk through the covered colonnade and flank out to the door on the right. I passed the prayer garden on my left. It was filled with statues, fountains, and newly manicured hedges and remembered how pretty it had been in full bloom that Spring. It was much warmer then too. I was getting colder by the second. But, then I got to the door–relief.

Except that it was locked. The metal handle sent a shiver to my backbone straight through my arm. But, “No matter,” I said to myself. I’ll just continue around the building and try the next door just around the corner. There are probably no fewer than 25 exit doors to the place. I’ve exited a number of them and try to find a new one to some surprise new part of the grounds whenever possible. It’s all part of the fun.

No. Locked too. Things were getting interesting.

It turns out that there’s just one way into the place. There are plenty of ways to exit outdoors, but the main entrance is referenced on each locked door. I came to this realization by the 5th door. I’m not sure if the cold was my dulling my mind or if I was too distracted laughing to myself. I had just realized I was literally following a footpath around the structure. It wasn’t just  a path but a puzzle. I could have turned back and saved myself a lengthy walk, but I thought, “Oh! Okay God, this is the labyrinth you wanted me to take.”

Then out loud I said, “Stop being so funny.” At that exact moment, a black helicopter hummed overhead and I briefly thought the things were going to end in waterboarding or an unpleasant government website experience and arbitrary fees. Maybe, I was on the psycho path. I pushed my icy hands into my coat pockets, stopped trying to open locked doors, and made my way counter-clockwise to the main entrance–the long way around. This was probably the intended journey in the first place so I might learn something. I was starting to pay attention. Finally.

No, it wasn’t the labyrinth I set out to do. It wasn’t the one I picked to walk or the one studied as I walked by with Zippy swinging his mower wildly nearby, but eventually it would get me inside if I kept going around and circled the place.

As I got most of the way around the complex I could smell lunch cooking from the kitchen. “The kitchen help probably don’t have to go through the main entrance,” I thought. (It was my first useful notion all day.)

Sure enough: I spotted an inconspicuous point of entry, sheltered with an overhang and a coffee can full of sand and cigarette butts sitting outside the door. Maybe it would be open. It was. As I pull the door a blast of warmness greeted me and behind it the smell of comfort food. I was back. I had almost gone full circle, but I had an insiders’ access point to put things to rights.

Just before I left the place for home I took my friend–who had carpooled with me there that morning–to see the new prayer puzzle up close. I walked through slowly but it wasn’t prayerfully. The symbolism had already done its job. I was just canvasing the design and saying my goodbyes. I got to the center of the circle and I knew I was ready to leave for home.

I did a little spin with my arms out because I think if it was a movie that’s what would have happened right at the point, and then I stepped straight through the center to get back out.

The surprise is that you don’t get to ever really pick your own labyrinth. It is picked for you. You can decide how to walk it and how meaningful it will be. You can be frustrated by it and worry about the turns or you can slow down, put one foot after the other, and get to the center. Then you’ll be home.

# # #

 

How Story is Trumping Word: Len Sweet

I got the pleasure of hearing Leonard Sweet in person at Evangelical Seminary yesterday. It was a free event, and that was surprising in itself.

Len talked about some important things. Some of them were already clear in my mind, but for the audience they felt shocking.

I will unwrap a few of his main points and add a few of my own over the next few posts.

He spoke about the power of image and story trumping words and books (which are essentially an anti-social and individualistic experience).

Len showed this video:

 

(It’s for a hotel. Their tag line is THERE’S NO GREATER ACT OF HOSPITALITY THAN TO EMBRACE A STRANGER AS ONE’S OWN.
IT’S IN OUR NATURE.) The (French) language barrier is overcome by using just a soundtrack and story that gets to the heart of something we all want.

“The world is stealing our best lines (as Christians) because we don’t know we have them.” -Len Sweet
(I would add that the Story is gone too–left to marketers and cheapened to sell goods and services, yet failing (of course) to truly deliver on its promise.)

It only takes a generation to lose a Story. Instead of mission statements maybe we need stories, or The Story.

How can we bring it to a new age and generation that has move “from Gutenburg to Google” ?

The arts may have a new renaissance if we properly apprehend the shift.

(Check back soon for the next in this series on “The Tyranny of the Left Brain”. Or get it sent to you directly by signing up in t he sidebar for delivery.)